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“I couldn’t do a chin-up to save my life,” Bill Sarraille recalls of his third-grade self. This did not deter him from sports, but he was plagued by mysterious pains […]
To keep myself fit, ready, and aware of changes in my body by Frank Hanley, Bolivia, North Carolina This is an exciting time for us. The research, clinical trials, and […]
Carolyn Lloyd’s journey as chief development officer of the FSHD Society reflects her lifelong commitment to service and empathy for those affected by chronic illness. Her role as a caregiver […]
Accelerating clinical trials and access to treatments by Lawrence Korngut, MD, and Blaine Penny, Calgary, Canada This is a very exciting time for the FSHD community, as new therapeutics are […]
Advocacy with humor and hacks Marisa Spain has a knack for making everyday advocacy both fun and impactful. Based in southeastern Michigan, Marisa brings fresh energy to accessibility awareness with […]
