Browsing “FSHD Research - FSHD Society”

Hope in the laboratory

Posted on April 21st, 20254/21/25

Taking back control of my destiny through research By Heloise Hoffmann, Standford University  For the past year, I have been working alongside a team of fellow undergraduates at Stanford University […]

Filed under: FSHD Research

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Aiming to access fresh funding for FSHD research

Posted on April 2nd, 20254/2/25

We need YOU – to write to your senators by Anna Gilmore, FSHD Society Last year was an exciting one for our community as we launched our first FSHD Day […]

Filed under: FSHD Research

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Avidity Biosciences Completes Enrollment in Biomarker Cohort in Phase 1/2 FORTITUDE™ Trial

Posted on March 31st, 20253/31/25

Letter from Avidity Biosciences to the FSHD community: Dear FSHD Community, Today, we are very pleased to share with you that we have completed enrollment in the biomarker cohort in […]

Filed under: FSHD Research, Living with FSHD, Media & PR

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Springbok Analytics Leads MRI Innovations in Multi-Site Pediatric FSHD Clinical Study

Posted on March 21st, 20253/21/25

AI-Driven Muscle Analysis to Support MOVE Peds Study, Advancing Trial Readiness for Pediatric FSHD CHARLOTTESVILLE, Va., March 17, 2025 /PRNewswire/ – Springbok Analytics (www.springbokanalytics.com), a leader in AI-powered muscle analysis, today […]

Filed under: FSHD Research, Living with FSHD, Media & PR

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The fate of the Fulcrum Phase 3 data

Posted on February 4th, 20252/4/25

This invaluable data is coming to the FSHD Society by Lucienne Ronco, PhD, FSHD Society When a clinical trial fails, what happens to the data? It may include hundreds of […]

Filed under: FSHD Research, FSHD Society News

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