Our look is new. Our purpose is the same. Learn more about our brand evolution.
In case you missed it, the long-awaited and first-of-its-kind digital research and health platform, BetterLife FSHD, launched last fall. In our video below (scroll too the bottom of the page), […]
Our first-ever FSHD 360 in Ontario, Canada, was a great success, with more than 70 attendees filling the Burnhamthorpe Community Centre in Mississauga on May 3, 2025. We’re delighted to […]
Taking back control of my destiny through research By Heloise Hoffmann, Standford University For the past year, I have been working alongside a team of fellow undergraduates at Stanford University […]
We need YOU – to write to your senators by Anna Gilmore, FSHD Society Last year was an exciting one for our community as we launched our first FSHD Day […]
Letter from Avidity Biosciences to the FSHD community: Dear FSHD Community, Today, we are very pleased to share with you that we have completed enrollment in the biomarker cohort in […]
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