Author: Dr. Raymond A. Huml Rare diseases affect millions worldwide, yet treatment options remain scarce. For families like ours who live with Facioscapulohumeral muscular dystrophy (FSHD) – the journey toward […]
Taking back control of my destiny through research By Heloise Hoffmann, Standford University For the past year, I have been working alongside a team of fellow undergraduates at Stanford University […]
We need YOU – to write to your senators by Anna Gilmore, FSHD Society Last year was an exciting one for our community as we launched our first FSHD Day […]
Letter from Avidity Biosciences to the FSHD community: Dear FSHD Community, Today, we are very pleased to share with you that we have completed enrollment in the biomarker cohort in […]
AI-Driven Muscle Analysis to Support MOVE Peds Study, Advancing Trial Readiness for Pediatric FSHD CHARLOTTESVILLE, Va., March 17, 2025 /PRNewswire/ – Springbok Analytics (www.springbokanalytics.com), a leader in AI-powered muscle analysis, today […]
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