Our look is new. Our purpose is the same. Learn more about our brand evolution.
The evening of the CureFSHD Gala on November 11, 2016, in Boston, Massachusetts, was one of those magical moments when we were overcome with gratitude for the generosity, courage, and […]
The recent national election, bringing in a new Administration, raises questions and concerns about the future of laws and programs of interest to researchers, patients and caregivers dealing with FSHD. […]
Please note that our office will be closed on the following dates: Thursday, November 24, 2016 Friday, November 25, 2016 Friday, December 2, 2016 Monday, December 26, 2016 Monday, January […]
Produced for the FSH Society’s 25th anniversary, our new documentary tells the story of how the Society’s work has led to the discovery of the genetic cause of facioscapulohumeral muscular dystrophy […]
Hot off the press! Our celebrity champion Max Adler has confirmed that he is attending. Comedian Wendy Liebman will host the evening. Get out your powdered wigs, unitards, and sparkle! […]
