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Highlights include: Introduction of June Kinoshita, the new Executive Director of the FSHD Society. She describes a plan to raise visibility of FSH muscular dystrophy. Atlanta Patient-Researcher meeting. The state […]
June Kinoshita joins the FSH Society as Executive Director
Important paper on FSHD published in Human Molecular Genetics by scientists at the BBRI NIH NICHD Sen. Paul Wellstone MDCRC for FSHD. The distinct message in the paper is that DUX4-fl expression is necessary […]
The Society’s 2012 International Patient and Researcher Network Meeting held Saturday, June 30 and Sunday July 1, in Atlanta, Georgia was a resounding success. Final program HERE. Thank you to […]
We’re excited to be launching our new website! We hope you like it. Please write to us with comments and feedback. Thank you!
