Highlights include: Introduction of June Kinoshita, the new Executive Director of the FSHD Society. She describes a plan to raise visibility of FSH muscular dystrophy. Atlanta Patient-Researcher meeting. The state… Read More »
FSH Watch Summer/Fall 2012
June Kinoshita joins the FSH Society as Executive Director
June Kinoshita joins the FSH Society as Executive Director
Important paper on FSHD published in Human Molecular Genetics
Important paper on FSHD published in Human Molecular Genetics by scientists at the BBRI NIH NICHD Sen. Paul Wellstone MDCRC for FSHD. The distinct message in the paper is that DUX4-fl expression is necessary… Read More »
The Society’s 2012 International Patient and Researcher Network Meeting
The Society’s 2012 International Patient and Researcher Network Meeting held Saturday, June 30 and Sunday July 1, in Atlanta, Georgia was a resounding success. Final program HERE. Thank you to… Read More »
Welcome to our new website
We’re excited to be launching our new website! We hope you like it. Please write to us with comments and feedback. Thank you!