Our look is new. Our purpose is the same. Learn more about our brand evolution.
“Our mom will always be a superhero in our eyes.” Ever since we can remember, our mom has told us that she has “special muscles.” When we were younger, we […]
Our 2018 Ghostly Gala, held on October 21 at Los Angeles’ fabled Cicada Club, raised awareness and funds for FSH muscular dystrophy. This year’s theme was comedy, laughing for a […]
“I have been impressed with the urgency of doing. Knowing is not enough. We must apply. Being willing is not enough. We must do.”―Leonardo da Vinci Throughout 2018, we have made […]
Attendees at our FSHD Family Day conference in Baltimore this past Sunday enjoyed an excellent series of talks by the clinicians and researchers at the Kennedy Krieger Institute. Here are […]
