You’ve made a difference and we are grateful As the year draws to a close, all of us at the FSH Society wish you Happy Holidays and thank you for… Read More »
Peace Joy Gratitude
An urgent call to action
This year-end webinar by FSHD Society CEO Mark Stone is a must watch. He lays out our detailed strategy that will get treatments for FSHD to our families by the… Read More »
New England chapter meeting talks
The University of Massachusetts Medical School’s Wellstone Center for FSHD Research is a leading team of scientists dedicated to understanding FSH muscular dystrophy and developing treatments. The center kindly hosted… Read More »
A treatment is out there
“Our mom will always be a superhero in our eyes.” Ever since we can remember, our mom has told us that she has “special muscles.” When we were younger, we… Read More »
#GivingTuesday matching gift challenge!
#GivingTuesday is a global day of giving fueled by the power of social media and collaboration. This year, it falls on November 27th, and a group of generous benefactors has pledged… Read More »