Epicrispr Biotechnologies Partners with Springbok Analytics to Integrate AI Muscle Analysis in First-in-Human FSHD Study Originally posted to BusinessWire on April 23, 2025 – Advanced MRI analytics to enhance early… Read More »
Press Release: Epicrispr Biotechnologies Partners with Springbok Analytics to Integrate AI Muscle Analysis in First-in-Human FSHD Study
International Women’s Day 2025
Celebrating Women in FSHD: International Women’s Day 2025 In honor of International Women’s Day, join us in celebrating many of the amazing women advancing research and creating community for folks… Read More »
Press Release: FSHD Society Strengthens Leadership with Experts in Healthcare, Biotech, and Market Access
FSHD Society Strengthens Leadership with Experts in Healthcare, Biotech, and Market Access FOR IMMEDIATE RELEASE RANDOLPH, Mass., Feb. 26, 2025 — The FSHD Society, a leading nonprofit dedicated to advancing… Read More »
2025 Volunteer Leadership Summit
Powered by love and resilience by Beth Johnston, FSHD Society “It’s not just about giving back—it’s about growing, having fun, and being part of something truly impactful.” – anonymous “Seeing… Read More »
European Neuromuscular Centre Conference on Pediatric FSHD
by Ally Roets, Tucson, Arizona I was honored to attend the Pediatric FSHD European Neuromuscular Centre (ENMC) conference in Amsterdam, Netherlands, this past October. I was invited as a parent… Read More »