Mental health crises are prevalent in our community. Help is out there A diagnosis of FSHD poses life-long challenges. Individuals live with an undercurrent of anxiety about how their symptoms […]
What can you do to help? When we say that we are embarking on a new era in clinical trials, what do we mean? After all, we have seen previous […]
To coincide with World Rare Disease Day FSHD Patients across Europe say what they want from clinical trials Announcement by FSHD Europe FSHD Europe is pleased to publish the Lay […]
When the going gets tough, your team will hold you up by Leigh Reynolds, FSHD Society Army Command Sgt. Maj. Gretchen Evans earned the highest rank an enlisted soldier can […]
Avidity Biosciences announced this week that it had received FDA Orphan Drug Designation for its experimental FSHD treatment, called AOC 1020. This does NOT mean the drug is now available […]
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