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Stories from our 2024 Volunteer Leadership Summit In early February, 75 of our Volunteer Leaders from across the US and Canada met in-person at the Chicago Airport Hilton or virtually […]
Who hasn’t worried that when they clean out the attic, they’ll inadvertently send a precious heirloom to the trash heap? Sometimes a good Samaritan finds the treasure and returns it. […]
Know the difference by Amanda Hill, FSHD Society In your journey with FSHD, you’ve probably heard about the importance of seeing your doctor regularly. You also most likely have heard […]
There are already many effective interventions by Nicol Voermans, MD PhD, Radboud University Medical Center We hear that currently there is “no cure for FSHD,” but this does not mean […]
