Our look is new. Our purpose is the same. Learn more about our brand evolution.
What can you do to help? When we say that we are embarking on a new era in clinical trials, what do we mean? After all, we have seen previous […]
To coincide with World Rare Disease Day FSHD Patients across Europe say what they want from clinical trials Announcement by FSHD Europe FSHD Europe is pleased to publish the Lay […]
When the going gets tough, your team will hold you up by Leigh Reynolds, FSHD Society Army Command Sgt. Maj. Gretchen Evans earned the highest rank an enlisted soldier can […]
Avidity Biosciences announced this week that it had received FDA Orphan Drug Designation for its experimental FSHD treatment, called AOC 1020. This does NOT mean the drug is now available […]
