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Our new video explains the basic facts about facioscapulohumeral muscular dystrophy–the symptoms, how it affects those who have it, how it is inherited, and how many people are affected. Watch […]
Contributor: Kathy Senecal, Cromwell, Connecticut As a wearer of a stance control brace for 3 years, I became aware that I have not yet met another individual with FSHD wearing […]
John Bach, MD, of the UMDNJ New Jersey Medical School, is a leading authority on breathing issues that can arise in individuals with facioscapulohumeral muscular dystrophy and other neuromuscular conditions. […]
Watch the videos here. The University of Rochester Fields Center for FSHD Research has posted a summary and videos from the 6th annual FSHD Family Day Conference held on April […]
by Angela Davis, Marquette, Michigan I first started noticing something was a bit off when I was around age 15. People often asked if I hurt my leg or knee. […]
