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Notes from our webinar with John Bach, MD by June Kinoshita, FSH Society The best practices for managing breathing issues were the subject of the June 19, 2018, FSH Society webinar […]
Here’s the recording of our FSH Society webinar on August 1, 2018. Dr. Leung is a neurologist at Kennedy Krieger Institute Center for Genetic Muscle Disorders and an assistant professor in […]
Our new video explains the basic facts about facioscapulohumeral muscular dystrophy–the symptoms, how it affects those who have it, how it is inherited, and how many people are affected. Watch […]
Contributor: Kathy Senecal, Cromwell, Connecticut As a wearer of a stance control brace for 3 years, I became aware that I have not yet met another individual with FSHD wearing […]
John Bach, MD, of the UMDNJ New Jersey Medical School, is a leading authority on breathing issues that can arise in individuals with facioscapulohumeral muscular dystrophy and other neuromuscular conditions. […]
