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We’re excited to announce the arrival of our new “About FSHD” brochure. Updated with the latest information on genetics, symptoms, diagnosis, patient care and more, this is your essential guide […]
Thursday October 1, 2015 8:00-9:00 PM EST The FSH Society is delighted to host this webinar and Q & A session with Rabi N. Tawil, MD. Dr. Tawil is Co-Director of the […]
Even without treatment, a diagnosis is therapeutic By Asifa Lalji (from her article in the FSH Watch Newsletter Spring/Summer 2015) When the Canadian provincial government of British Columbia decided it […]
Evidence-based, if incomplete, new guideline is a major step forward. All too often, FSHD patients encounter doctors whose knowledge of the disease seems to be gleaned from dusty textbooks. A […]
From PRWeb Contact Information: Rosie Hale 617-779-1893 FSHSociety@shiftcomm.com Guideline is a landmark step forward for the diagnosis; comes as a result of FSH Society’s advocacy efforts over the past 20 […]
