Thursday October 1, 2015
8:00-9:00 PM EST
The FSH Society is delighted to host this webinar and Q & A session with Rabi N. Tawil, MD. Dr. Tawil is Co-Director of the MDA Neuromuscular Disease Clinic at the University of Rochester. He is the lead author of “Evidence-based guideline summary: Evaluation, diagnosis, and management of facioscapulohumeral muscular dystrophy,” the first such care guideline for FSHD, which was published this past July in the journal Neurology.
You can download and review the summary for patients in preparation for the webinar.
This webinar is open to everyone with FSHD who wishes to learn more about the standard of medical care every patient should receive. An open dialogue and questions will be encouraged.
RSVP by September 29 by sending email to June Kinoshita. You will be added to the attendee list and will receive a link for the webinar on October 1st. Space is limited so sign up early!
The new FSHD care guideline was made possible through the tireless advocacy of the FSH Society and others. We thank our many donors and supporters for making this work possible.