Our look is new. Our purpose is the same. Learn more about our brand evolution.
Good Bad Things is unlike any film you’ve ever seen by Erin Saxon, FSHD Society Good Bad Things is almost here! Last August, we shared updates on the project, and […]
From the Women on Wellness group At our May meeting, one member shared a great question: Has anyone had experience with falling backwards due to their lordosis? She didn’t feel […]
Preliminary findings from our survey to understand the economic impact of FSHD by June Kinoshita, FSHD Society As a growing number of drugs enter clinical trials for FSHD, a question […]
Not every person with FSHD will need a mobility device, but many will at some point. The many designs and brands on the market can be daunting.
Stumble control technology reduces falls by 80 percent by Kathy Senecal, New England chapter co-leader It can be difficult to find the right adaptive equipment we need to help us […]
