ALL East Coast Chapter Meeting

East Coast Chapter Meeting

Wednesday, June 25, 2025, 7:00pm – 8:00pm ET, via Zoom*

*Link will be sent upon receipt of RSVP

We’re excited to pilot a new regional meeting format designed to bring more of our FSHD community together.

What to Expect:

1. 15-20 minutes of Society-wide news and updates
2. 40-45 minutes in smaller breakout groups by chapter, for connection, discussion, and support

Featured Updates:

Lucienne Ronco, Ph.D., Chief Science Officer at the FSHD Society, will speak to a few important updates:

1. International Research Congress (June 12-13 Event): Key announcements and presentations from the 32nd annual event.
2. Avidity Biosciences Update (June 24 Webinar): We’ll review top-line data and what it means for the FSHD community.
3. Fulcrum Reach Trial (May 28 Webinar): We’ll provide Dr. Jeffrey Statland’s review of the first-ever Phase 3 trial for FSHD, and what this means for the future of FSHD treatments and clinical trials.

If you have questions related to these topics, please email them to Ashley Ferreira at ashley.ferreira@fshdsociety.org by Monday, June 23rd.