Lighting the Way to a Cure

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Zoom Virtual Meeting

KS United States

Jun

3

FSHD University – The MOVE Study

Jun 3 @ 1:00 pm - 2:00 pm

1:00 pm ET | 12:00 pm CT | 11:00 am MT | 10:00 am PT Kate Eichinger, DPT, and Johanna Hamel, MD. Presented by Johanna Hamel, MD, and Kate Eichinger, DPT, from the University of Rochester Medical School. When doctors diagnose individuals with a progressive condition like FSH muscular dystrophy (FSHD), they’re often asked, What does the future look like? Will I need to use an orthotic brace? How long do I have before I need to use a walker…

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New England Connections

Jun 3 @ 7:00 pm - 8:30 pm
Zoom Virtual Meeting KS United States

YOU'RE INVITED to the first New England Connections meeting, Thursday June 3rd at 7pm ET. This meeting will be held virtually. This will be a casual, introductory meeting where we can start to get to know our FSHD family across our region! There is no set topic, and everyone is encouraged to participate in the discussion. The Connecticut group has been hosting successful support group-style meetings this way for over 3 years, and we can’t wait to see the group…

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Jul

6

South Carolina Virtual Meeting

Jul 6 @ 8:00 pm - 9:00 pm
Zoom Virtual Meeting KS United States

We hope you'll join us for the upcoming South Carolina Chapter virtual meeting! Our gatherings are informal, and we welcome new friends! Please stay tuned for updates as we put our agenda together - and if there's a topic you want us to cover, please let us know. Join the meeting at THIS LINK! I look forward to "seeing" you all soon! -Frank Hanley, Chapter Director SouthCarolinaChapter@fshdsociety.org

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Oct

5

South Carolina Chapter Meeting

Oct 5 @ 8:00 pm - 9:00 pm
Zoom Virtual Meeting KS United States

Please Save-the-Date for our Fall South Carolina Chapter meeting! Our gatherings are informal, and we welcome new friends! Please stay tuned for updates as we put our agenda together - and if there's a topic you want us to cover, please let us know. Join the meeting at THIS LINK! I look forward to "seeing" you all soon! -Frank Hanley, Chapter Director SouthCarolinaChapter@fshdsociety.org  

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CT Connections

Oct 7 @ 7:00 pm - 8:30 pm
Zoom Virtual Meeting KS United States

Please join us for our quarterly virtual chapter meeting! We welcome new friends, so please feel free to dial in from anywhere. We look forward to "seeing"/meeting you soon! -Kathy Senecal, Chapter Director JOIN THE MEETING HERE!

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