English
English
العربية Español de México Français du Canada 简体中文
  • Events
  • Blog
  • BetterLife
FSHD Society
  • Living with FSHD
        • Understanding FSHD
          • Diagnosis
          • Early-onset FSHD
          • Genetic Testing
          • Symptoms
          • FSHD University
            • Physical Health
            • Wellness
          • Glossary of Scientific Terms
          • Patient Library
          • Genetic Cause
        • Managing FSHD
          • BetterLife FSHD
          • Finding Care
          • FSHD Navigator
          • Newly Diagnosed with FSHD?
          • FSHD Clinical Care
          • Additional Resources
            • Adaptive Equipment
            • Coordinating Care
            • Caregiver Self-care
            • Financial/Legal Resources
            • Family Planning
  • Get Involved
        • Communities
          • Local Chapters
          • Online Communities
            • Gathering Place
            • Social Media
          • Parents’ Roundtable Chapter
          • World FSHD Alliance
        • Events
          • Walk & Roll to Cure FSHD
          • FSHD 360 Regional Conferences
          • FSHD Connect Conference
          • World FSHD Day
        • How to Help
          • Ways to Give
            • Fundraising
            • Donate
          • Volunteer
        • Advocacy
          • Government Advocacy
          • FDA Advocacy
            • Voice of the Patient Report
            • Upper Body Mobility
          • Payor Advocacy
            • True Cost of FSHD
          • Share Your FSHD Story
  • Research & Clinical Care
        • Research & Clinical Trials
          • Drug Development Pipeline
          • Clinical Trial Research Network
          • Current Trials and Studies
          • Clinical Trial Education
            • Clinical Trials 101
            • Are Clinical Trials Right for Me?
            • How to Get Started with a Clinical Trial
            • Screening and consent
            • What to expect
            • After a Trial
          • Research Updates
        • For Researchers
          • International Research Congress
          • BetterLife FSHD Research Gateway
          • Apply for a Grant
        • For Clinicians
          • Continuing Education
          • FSHD Masterclass
        • Therapeutic Accelerator
          • Project Mercury
          • Global Innovation Hub
  • About Us
        • About the FSHD Society
          • History
          • Our Mission
          • Our Impact
            • Research We Have Funded
          • Our Team
          • Our Partners
          • Financials
          • Media Center
            • Brand Guidelines
  • News & Media
        • Blog
          • FSHD Research
          • FSHD Society News
          • Fundraising & Events
          • General
          • Living with FSHD
            • Health and Medicine
            • Mental Health
            • PT and Exercise
            • Tips and Tricks
          • Media & PR
        • Media Library
        • FSHD Straight Talk Podcast
        • The FSHD Advocate Magazine
  • Events
  • Blog
  • BetterLife
  • Donate Today
Donate Today
17 events found.

Zoom Virtual Meeting

« All Events
Address
United States Get Directions

Events at this venue

Today
  • April 2026

  • Thu 16

    FSHD University: Travel Without Limits: Exploring the World with FSHD

    Featured Apr 16 @ 1:00 pm - 2:00 pm FSHD University
    Zoom Virtual Meeting , United States

    Thursday, April 16 at 1:00 pm ET Presenter: Mollie Garrett, Garrett Travel Adventures, LLC Mollie Garrett, a travel expert who specializes in accessible travel for individuals with disabilities and who brings her own lived experience as a traveler with FSHD, will share her personal journey navigating the world with FSHD, along with practical tips that […]

  • Mon 20

    Young Adults

    Featured Apr 20 @ 8:00 pm - 9:00 pm Young Adults
    Zoom Virtual Meeting , United States

    Young Adults Meeting 8:00 pm ET | 7:00 pm CT | 6:00 pm MT | 5:00 pm PT NEW DATE AND TIME: Third Monday of every OTHER month. We will meet in February, April, June, August, October, December in 2026. FSHD Young Adults is a social and support group focused on encouraging and empowering young […]

  • Tue 21

    Parents’ Roundtable

    Featured Apr 21 @ 8:00 pm - 9:00 pm Parent Roundtable
    Zoom Virtual Meeting , United States

    Parents' Roundtable 8:00 PM ET | 7:00 PM CT | 6:00 PM MT | 5:00 PM PT New Schedule: The Parents' Roundtable will meet quarterly starting in 2026. We will meet in January, April, July, and October of 2026. Our April Roundtable guest will be Emma Weatherley, the purpose-driven Managing Director of FSHD Global. Diagnosed […]

  • Thu 23

    Feeling Fit with FSHD: Energy Sovereignty: A Qigong Practice for Women

    Featured Apr 23 @ 7:30 pm - 8:30 pm Feeling Fit with FSHD
    Zoom Virtual Meeting , United States

    7:30pm ET/6:30 CT/5:30 MT/4:30 PT Join Energy Alchemist Rose Wippich for a nurturing 60-minute practice designed specifically for women navigating muscular dystrophy. This gentle session weaves together qigong and adaptive yoga, guiding you from grounding and gentle mobilization, through empowering practices to restorative integration with Reiki healing. You'll explore what it means to be the […]

  • Sat 25

    Canceled Wellness Hour – Weekend – Global Community

    Apr 25 @ 1:00 pm - 2:00 pm Feeling Fit with FSHD
    Zoom Virtual Meeting , United States

    Cancelled, will return in May Join us for our next Weekend Wellness Hour, an open forum gathering designed for members of the international FSHD community who are available on the last Saturday of most months. This welcoming space brings together individuals at every stage of the FSHD journey, from newly diagnosed to long-experienced community members, […]

  • Tue 28

    Virginia Chapter Meeting

    Apr 28 @ 6:00 pm - 7:00 pm 2026 Chapter Meetings
    Zoom Virtual Meeting , United States

    You're invited to our next FSHD Society Chapter Meeting – a supportive space to connect with others who understand your journey. This is a great opportunity to connect, share experiences, and stay informed on the latest news, research, and resources from the FSHD community. Whether you’re looking to share your story, hear from others, or […]

  • May 2026

  • Tue 26

    Virginia Chapter Meeting

    May 26 @ 6:00 pm - 7:00 pm 2026 Chapter Meetings
    Zoom Virtual Meeting , United States

    You're invited to our next FSHD Society Chapter Meeting – a supportive space to connect with others who understand your journey. This is a great opportunity to connect, share experiences, and stay informed on the latest news, research, and resources from the FSHD community. Whether you’re looking to share your story, hear from others, or […]

  • June 2026

  • Mon 15

    Young Adults

    Featured Jun 15 @ 8:00 pm - 9:00 pm Young Adults
    Zoom Virtual Meeting , United States

    Young Adults Meeting 8:00 pm ET | 7:00 pm CT | 6:00 pm MT | 5:00 pm PT NEW DATE AND TIME: Third Monday of every OTHER month. We will meet in February, April, June, August, October, December in 2026. FSHD Young Adults is a social and support group focused on encouraging and empowering young […]

  • July 2026

  • Tue 21

    Parents’ Roundtable

    Featured Jul 21 @ 8:00 pm - 9:00 pm Parent Roundtable
    Zoom Virtual Meeting , United States

    Parents' Roundtable 8:00 PM ET | 7:00 PM CT | 6:00 PM MT | 5:00 PM PT New Schedule: The Parents' Roundtable will meet quarterly starting in 2026. We will meet in January, April, July, and October of 2026. Join us for our Parents’ Roundtable on the 3rd Tuesday, where parents meet to exchange ideas, […]

  • August 2026

  • Mon 17

    Young Adults

    Featured Aug 17 @ 8:00 pm - 9:00 pm Young Adults
    Zoom Virtual Meeting , United States

    Young Adults Meeting 8:00 pm ET | 7:00 pm CT | 6:00 pm MT | 5:00 pm PT NEW DATE AND TIME: Third Monday of every OTHER month. We will meet in February, April, June, August, October, December in 2026. FSHD Young Adults is a social and support group focused on encouraging and empowering young […]

  • Tue 25

    Virginia Chapter Meeting

    Aug 25 @ 6:00 pm - 7:00 pm 2026 Chapter Meetings
    Zoom Virtual Meeting , United States

    You're invited to our next FSHD Society Chapter Meeting – a supportive space to connect with others who understand your journey. This is a great opportunity to connect, share experiences, and stay informed on the latest news, research, and resources from the FSHD community. Whether you’re looking to share your story, hear from others, or […]

  • September 2026

  • Tue 22

    Virginia Chapter Meeting

    Sep 22 @ 6:00 pm - 7:00 pm 2026 Chapter Meetings
    Zoom Virtual Meeting , United States

    You're invited to our next FSHD Society Chapter Meeting – a supportive space to connect with others who understand your journey. This is a great opportunity to connect, share experiences, and stay informed on the latest news, research, and resources from the FSHD community. Whether you’re looking to share your story, hear from others, or […]

  • October 2026

  • Mon 19

    Young Adults

    Featured Oct 19 @ 8:00 pm - 9:00 pm Young Adults
    Zoom Virtual Meeting , United States

    Young Adults Meeting 8:00 pm ET | 7:00 pm CT | 6:00 pm MT | 5:00 pm PT NEW DATE AND TIME: Third Monday of every OTHER month. We will meet in February, April, June, August, October, December in 2026. FSHD Young Adults is a social and support group focused on encouraging and empowering young […]

  • Tue 20

    Parents’ Roundtable

    Featured Oct 20 @ 8:00 pm - 9:00 pm Parent Roundtable
    Zoom Virtual Meeting , United States

    Parents' Roundtable 8:00 PM ET | 7:00 PM CT | 6:00 PM MT | 5:00 PM PT New Schedule: The Parents' Roundtable will meet quarterly starting in 2026. We will meet in January, April, July, and October of 2026. Join us for our Parents’ Roundtable on the 3rd Tuesday, where parents meet to exchange ideas, […]

  • Tue 27

    Virginia Chapter Meeting

    Oct 27 @ 6:00 pm - 7:00 pm 2026 Chapter Meetings
    Zoom Virtual Meeting , United States

    You're invited to our next FSHD Society Chapter Meeting – a supportive space to connect with others who understand your journey. This is a great opportunity to connect, share experiences, and stay informed on the latest news, research, and resources from the FSHD community. Whether you’re looking to share your story, hear from others, or […]

  • November 2026

  • Tue 24

    Virginia Chapter Meeting

    Nov 24 @ 6:00 pm - 7:00 pm 2026 Chapter Meetings
    Zoom Virtual Meeting , United States

    You're invited to our next FSHD Society Chapter Meeting – a supportive space to connect with others who understand your journey. This is a great opportunity to connect, share experiences, and stay informed on the latest news, research, and resources from the FSHD community. Whether you’re looking to share your story, hear from others, or […]

  • December 2026

  • Mon 21

    Young Adults

    Featured Dec 21 @ 8:00 pm - 9:00 pm Young Adults
    Zoom Virtual Meeting , United States

    Young Adults Meeting 8:00 pm ET | 7:00 pm CT | 6:00 pm MT | 5:00 pm PT NEW DATE AND TIME: Third Monday of every OTHER month. We will meet in February, April, June, August, October, December in 2026. FSHD Young Adults is a social and support group focused on encouraging and empowering young […]

  • Previous Events
  • Today
  • Google Calendar
  • iCalendar
  • Outlook 365
  • Outlook Live
  • Export .ics file
  • Export Outlook .ics file

Stay Informed

Sign up for email alerts and stay up to date with the latest FSHD news and updates.

This field is for validation purposes and should be left unchanged.
Name(Required)
FSHD Society
75 North Main Street, Suite 1073
Randolph, MA 02368
(781) 301-6060
Donations: PO Box 411617 Boston, MA 02241-1617
Donate Today
  • Living With FSHD
    • Glossary of Scientific Terms
    • Understanding FSHD
    • Managing FSHD
    • Research & Clinical Trials
    • Join Us
  • Advocacy
    • Communities
    • Events
    • Fundraising
    • Get Involved
  • Research
    • Therapeutic Accelerator
    • Research & Clinical Trials
    • For Clinicians
    • Grant Opportunities
  • Twitter
  • Instagram
  • Facebook
  • YouTube
  • LinkedIn
  • Discord

©2026 FSHD Society. All Rights Reserved.

  • Inclusivity and Equity
  • Privacy Policy
  • Financials
  • Glossary
  • Contact Us
We've detected you might be speaking a different language. Do you want to change to:
English
English
Change language to العربية العربية
Change language to Español de México Español de México
Change language to Français du Canada Français du Canada
Change language to 简体中文 简体中文
Change Language
Close and do not switch language
English
العربية Español de México Français du Canada 简体中文