Lighting the Way to a Cure

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FSHD Society

(781) 301-6060||www.FSHDSociety.org
FSHD Society, Lighting the Way to a Cure

May

10

Gathering at FSHD Connect

Wellness Hour (Virtual Meeting)

May 10 @ 5:00 pm - 6:00 pm
|Recurring Event (See all)

An event every month that begins at 5:00 pm on day Second of the month, repeating until Dec 13, 2021

This is our monthly Zoom meeting on Wellness, held on the second Monday of each month at 5:00-6:00 pm ET (if Monday is a national holiday, the meeting will be held on Tuesday). It is open to everyone in the FSHD community. This is your time to enjoy the company of fellow FSHers, share challenges, talk about what works for you, and feel validated and supported in whatever you may be going through. If you are interested, please register by…

Find out more »
FSHD Society Radio -small

FSHD Society Radio with Lori Brant, personal coach

May 11 @ 8:00 pm - 9:00 pm

9:00 PM ET | 8:00 PM CT | 7:00 PM MT | 6:00 PM PT Lori Brant Join host Tim Hollenback on YouTube on the 2nd Tuesday of every month. Call Tim at 414-375-2561 to share your thoughts, or post questions and comments in the YouTube comments section. You can also watch the recording on Facebook or access the podcast on most any streaming channel. "Our guest this month is Lori Brant, a life coach who lives with FSH muscular dystrophy.…

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Jun

3

FSHD University – The MOVE Study

Jun 3 @ 1:00 pm - 2:00 pm

1:00 pm ET | 12:00 pm CT | 11:00 am MT | 10:00 am PT Kate Eichinger, DPT, and Johanna Hamel, MD. Presented by Johanna Hamel, MD, and Kate Eichinger, DPT, from the University of Rochester Medical School. When doctors diagnose individuals with a progressive condition like FSH muscular dystrophy (FSHD), they’re often asked, What does the future look like? Will I need to use an orthotic brace? How long do I have before I need to use a walker…

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FSHD Society Radio -small

FSHD Society Radio – Jammin’ with Jamshid

Jun 8 @ 8:00 pm - 9:00 pm
|Recurring Event (See all)

An event every month that begins at 8:00 pm on day Second of the month, happening 12 times

9:00 PM ET | 8:00 PM CT | 7:00 PM MT | 6:00 PM PT Our guest this month is our very own Jamshid Arjomand, PhD, chief science officer. He'll update you about the latest research and drug development advances (that he's allowed to talk about). If you have questions about FSHD research, now's your chance to get them answered! Join host Tim Hollenback on YouTube on the 2nd Tuesday of every month. Call Tim at 414-375-2561 to share your thoughts,…

Find out more »
Gathering at FSHD Connect

Wellness Hour (Virtual Meeting)

Jun 14 @ 5:00 pm - 6:00 pm
|Recurring Event (See all)

An event every month that begins at 5:00 pm on day Second of the month, repeating until Dec 13, 2021

This is our monthly Zoom meeting on Wellness, held on the second Monday of each month at 5:00-6:00 pm ET (if Monday is a national holiday, the meeting will be held on Tuesday). It is open to everyone in the FSHD community. This is your time to enjoy the company of fellow FSHers, share challenges, talk about what works for you, and feel validated and supported in whatever you may be going through. If you are interested, please register by…

Find out more »

Jul

12

Gathering at FSHD Connect

Wellness Hour (Virtual Meeting)

Jul 12 @ 5:00 pm - 6:00 pm
|Recurring Event (See all)

An event every month that begins at 5:00 pm on day Second of the month, repeating until Dec 13, 2021

This is our monthly Zoom meeting on Wellness, held on the second Monday of each month at 5:00-6:00 pm ET (if Monday is a national holiday, the meeting will be held on Tuesday). It is open to everyone in the FSHD community. This is your time to enjoy the company of fellow FSHers, share challenges, talk about what works for you, and feel validated and supported in whatever you may be going through. If you are interested, please register by…

Find out more »
FSHD Society Radio -small

FSHD Society Radio – Jammin’ with Jamshid

Jul 13 @ 8:00 pm - 9:00 pm
|Recurring Event (See all)

An event every month that begins at 8:00 pm on day Second of the month, happening 12 times

9:00 PM ET | 8:00 PM CT | 7:00 PM MT | 6:00 PM PT Our guest this month is our very own Jamshid Arjomand, PhD, chief science officer. He'll update you about the latest research and drug development advances (that he's allowed to talk about). If you have questions about FSHD research, now's your chance to get them answered! Join host Tim Hollenback on YouTube on the 2nd Tuesday of every month. Call Tim at 414-375-2561 to share your thoughts,…

Find out more »

Aug

9

Gathering at FSHD Connect

Wellness Hour (Virtual Meeting)

Aug 9 @ 5:00 pm - 6:00 pm
|Recurring Event (See all)

An event every month that begins at 5:00 pm on day Second of the month, repeating until Dec 13, 2021

This is our monthly Zoom meeting on Wellness, held on the second Monday of each month at 5:00-6:00 pm ET (if Monday is a national holiday, the meeting will be held on Tuesday). It is open to everyone in the FSHD community. This is your time to enjoy the company of fellow FSHers, share challenges, talk about what works for you, and feel validated and supported in whatever you may be going through. If you are interested, please register by…

Find out more »
FSHD Society Radio -small

FSHD Society Radio – Jammin’ with Jamshid

Aug 10 @ 8:00 pm - 9:00 pm
|Recurring Event (See all)

An event every month that begins at 8:00 pm on day Second of the month, happening 12 times

9:00 PM ET | 8:00 PM CT | 7:00 PM MT | 6:00 PM PT Our guest this month is our very own Jamshid Arjomand, PhD, chief science officer. He'll update you about the latest research and drug development advances (that he's allowed to talk about). If you have questions about FSHD research, now's your chance to get them answered! Join host Tim Hollenback on YouTube on the 2nd Tuesday of every month. Call Tim at 414-375-2561 to share your thoughts,…

Find out more »

Sep

13

Gathering at FSHD Connect

Wellness Hour (Virtual Meeting)

Sep 13 @ 5:00 pm - 6:00 pm
|Recurring Event (See all)

An event every month that begins at 5:00 pm on day Second of the month, repeating until Dec 13, 2021

This is our monthly Zoom meeting on Wellness, held on the second Monday of each month at 5:00-6:00 pm ET (if Monday is a national holiday, the meeting will be held on Tuesday). It is open to everyone in the FSHD community. This is your time to enjoy the company of fellow FSHers, share challenges, talk about what works for you, and feel validated and supported in whatever you may be going through. If you are interested, please register by…

Find out more »
FSHD Society Radio -small

FSHD Society Radio – Jammin’ with Jamshid

Sep 14 @ 8:00 pm - 9:00 pm
|Recurring Event (See all)

An event every month that begins at 8:00 pm on day Second of the month, happening 12 times

9:00 PM ET | 8:00 PM CT | 7:00 PM MT | 6:00 PM PT Our guest this month is our very own Jamshid Arjomand, PhD, chief science officer. He'll update you about the latest research and drug development advances (that he's allowed to talk about). If you have questions about FSHD research, now's your chance to get them answered! Join host Tim Hollenback on YouTube on the 2nd Tuesday of every month. Call Tim at 414-375-2561 to share your thoughts,…

Find out more »

Oct

11

Gathering at FSHD Connect

Wellness Hour (Virtual Meeting)

Oct 11 @ 5:00 pm - 6:00 pm
|Recurring Event (See all)

An event every month that begins at 5:00 pm on day Second of the month, repeating until Dec 13, 2021

This is our monthly Zoom meeting on Wellness, held on the second Monday of each month at 5:00-6:00 pm ET (if Monday is a national holiday, the meeting will be held on Tuesday). It is open to everyone in the FSHD community. This is your time to enjoy the company of fellow FSHers, share challenges, talk about what works for you, and feel validated and supported in whatever you may be going through. If you are interested, please register by…

Find out more »
FSHD Society Radio -small

FSHD Society Radio – Jammin’ with Jamshid

Oct 12 @ 8:00 pm - 9:00 pm
|Recurring Event (See all)

An event every month that begins at 8:00 pm on day Second of the month, happening 12 times

9:00 PM ET | 8:00 PM CT | 7:00 PM MT | 6:00 PM PT Our guest this month is our very own Jamshid Arjomand, PhD, chief science officer. He'll update you about the latest research and drug development advances (that he's allowed to talk about). If you have questions about FSHD research, now's your chance to get them answered! Join host Tim Hollenback on YouTube on the 2nd Tuesday of every month. Call Tim at 414-375-2561 to share your thoughts,…

Find out more »

Nov

8

Gathering at FSHD Connect

Wellness Hour (Virtual Meeting)

Nov 8 @ 5:00 pm - 6:00 pm
|Recurring Event (See all)

An event every month that begins at 5:00 pm on day Second of the month, repeating until Dec 13, 2021

This is our monthly Zoom meeting on Wellness, held on the second Monday of each month at 5:00-6:00 pm ET (if Monday is a national holiday, the meeting will be held on Tuesday). It is open to everyone in the FSHD community. This is your time to enjoy the company of fellow FSHers, share challenges, talk about what works for you, and feel validated and supported in whatever you may be going through. If you are interested, please register by…

Find out more »
FSHD Society Radio -small

FSHD Society Radio – Jammin’ with Jamshid

Nov 9 @ 8:00 pm - 9:00 pm
|Recurring Event (See all)

An event every month that begins at 8:00 pm on day Second of the month, happening 12 times

9:00 PM ET | 8:00 PM CT | 7:00 PM MT | 6:00 PM PT Our guest this month is our very own Jamshid Arjomand, PhD, chief science officer. He'll update you about the latest research and drug development advances (that he's allowed to talk about). If you have questions about FSHD research, now's your chance to get them answered! Join host Tim Hollenback on YouTube on the 2nd Tuesday of every month. Call Tim at 414-375-2561 to share your thoughts,…

Find out more »

Dec

13

Gathering at FSHD Connect

Wellness Hour (Virtual Meeting)

Dec 13 @ 5:00 pm - 6:00 pm
|Recurring Event (See all)

An event every month that begins at 5:00 pm on day Second of the month, repeating until Dec 13, 2021

This is our monthly Zoom meeting on Wellness, held on the second Monday of each month at 5:00-6:00 pm ET (if Monday is a national holiday, the meeting will be held on Tuesday). It is open to everyone in the FSHD community. This is your time to enjoy the company of fellow FSHers, share challenges, talk about what works for you, and feel validated and supported in whatever you may be going through. If you are interested, please register by…

Find out more »
FSHD Society Radio -small

FSHD Society Radio – Jammin’ with Jamshid

Dec 14 @ 8:00 pm - 9:00 pm
|Recurring Event (See all)

An event every month that begins at 8:00 pm on day Second of the month, happening 12 times

9:00 PM ET | 8:00 PM CT | 7:00 PM MT | 6:00 PM PT Our guest this month is our very own Jamshid Arjomand, PhD, chief science officer. He'll update you about the latest research and drug development advances (that he's allowed to talk about). If you have questions about FSHD research, now's your chance to get them answered! Join host Tim Hollenback on YouTube on the 2nd Tuesday of every month. Call Tim at 414-375-2561 to share your thoughts,…

Find out more »

May

10

FSHD Society Radio -small

FSHD Society Radio – Jammin’ with Jamshid

May 10, 2022 @ 8:00 pm - 9:00 pm
|Recurring Event (See all)

An event every month that begins at 8:00 pm on day Second of the month, happening 12 times

9:00 PM ET | 8:00 PM CT | 7:00 PM MT | 6:00 PM PT Our guest this month is our very own Jamshid Arjomand, PhD, chief science officer. He'll update you about the latest research and drug development advances (that he's allowed to talk about). If you have questions about FSHD research, now's your chance to get them answered! Join host Tim Hollenback on YouTube on the 2nd Tuesday of every month. Call Tim at 414-375-2561 to share your thoughts,…

Find out more »
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