Lighting the Way to a Cure

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FSHD Society

(781) 301-6060||www.FSHDSociety.org
FSHD Society, Lighting the Way to a Cure

Apr

8

Story time with Belinda Miller

Apr 8 @ 2:00 pm - 2:30 pm
|Recurring Event (See all)

An event every week that begins at 2:00 pm on Wednesday, repeating until Apr 29, 2020

Author Belinda Miller.

Those of you who have kids at home and are wondering how to fill the day with activities, gather around the family computer! Award-winning author Belinda Miller will read every week from the first volume of her Phillip's Quest series, Winterfrost.Award-winning author Belinda Miller will read every week from the first volume of her Phillip's Quest series, Winterfrost. She'll be on hand to answer listeners' questions. The first three question-askers will receive a free copy of the book! Register here for story time…

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FSHD Radio Sequester Camp

Apr 8 @ 6:00 pm - 7:00 pm
|Recurring Event (See all)

An event every week that begins at 6:00 pm on Wednesday, repeating until Apr 29, 2020

Facebook Live United States
FSHD Radio Live on Facebook

CHANGE OF TIME TO: 7:00 PM ET | 6:00 PM CT | 5:00 PM MT | 4:00 PM PT We're In This Together During this time of self-isolation because of the covid-19 crisis, it’s important to stay connected. Join FSHD Radio show host Tim Hollenback every Wednesday evening on Facebook Live for an open-ended conversation about whatever is on your mind. Whether you just need someone to talk to, are trying to solve a problem, or have ideas to share, we welcome…

Find out more »

Story time with Belinda Miller

Apr 15 @ 2:00 pm - 2:30 pm
|Recurring Event (See all)

An event every week that begins at 2:00 pm on Wednesday, repeating until Apr 29, 2020

Author Belinda Miller.

Those of you who have kids at home and are wondering how to fill the day with activities, gather around the family computer! Award-winning author Belinda Miller will read every week from the first volume of her Phillip's Quest series, Winterfrost.Award-winning author Belinda Miller will read every week from the first volume of her Phillip's Quest series, Winterfrost. She'll be on hand to answer listeners' questions. The first three question-askers will receive a free copy of the book! Register here for story time…

Find out more »

FSHD Radio Sequester Camp

Apr 15 @ 6:00 pm - 7:00 pm
|Recurring Event (See all)

An event every week that begins at 6:00 pm on Wednesday, repeating until Apr 29, 2020

Facebook Live United States
FSHD Radio Live on Facebook

CHANGE OF TIME TO: 7:00 PM ET | 6:00 PM CT | 5:00 PM MT | 4:00 PM PT We're In This Together During this time of self-isolation because of the covid-19 crisis, it’s important to stay connected. Join FSHD Radio show host Tim Hollenback every Wednesday evening on Facebook Live for an open-ended conversation about whatever is on your mind. Whether you just need someone to talk to, are trying to solve a problem, or have ideas to share, we welcome…

Find out more »

Story time with Belinda Miller

Apr 22 @ 2:00 pm - 2:30 pm
|Recurring Event (See all)

An event every week that begins at 2:00 pm on Wednesday, repeating until Apr 29, 2020

Author Belinda Miller.

Those of you who have kids at home and are wondering how to fill the day with activities, gather around the family computer! Award-winning author Belinda Miller will read every week from the first volume of her Phillip's Quest series, Winterfrost.Award-winning author Belinda Miller will read every week from the first volume of her Phillip's Quest series, Winterfrost. She'll be on hand to answer listeners' questions. The first three question-askers will receive a free copy of the book! Register here for story time…

Find out more »

FSHD Radio Sequester Camp

Apr 22 @ 6:00 pm - 7:00 pm
|Recurring Event (See all)

An event every week that begins at 6:00 pm on Wednesday, repeating until Apr 29, 2020

Facebook Live United States
FSHD Radio Live on Facebook

CHANGE OF TIME TO: 7:00 PM ET | 6:00 PM CT | 5:00 PM MT | 4:00 PM PT We're In This Together During this time of self-isolation because of the covid-19 crisis, it’s important to stay connected. Join FSHD Radio show host Tim Hollenback every Wednesday evening on Facebook Live for an open-ended conversation about whatever is on your mind. Whether you just need someone to talk to, are trying to solve a problem, or have ideas to share, we welcome…

Find out more »

Story time with Belinda Miller

Apr 29 @ 2:00 pm - 2:30 pm
|Recurring Event (See all)

An event every week that begins at 2:00 pm on Wednesday, repeating until Apr 29, 2020

Author Belinda Miller.

Those of you who have kids at home and are wondering how to fill the day with activities, gather around the family computer! Award-winning author Belinda Miller will read every week from the first volume of her Phillip's Quest series, Winterfrost.Award-winning author Belinda Miller will read every week from the first volume of her Phillip's Quest series, Winterfrost. She'll be on hand to answer listeners' questions. The first three question-askers will receive a free copy of the book! Register here for story time…

Find out more »

FSHD Radio Sequester Camp

Apr 29 @ 6:00 pm - 7:00 pm
|Recurring Event (See all)

An event every week that begins at 6:00 pm on Wednesday, repeating until Apr 29, 2020

Facebook Live United States
FSHD Radio Live on Facebook

CHANGE OF TIME TO: 7:00 PM ET | 6:00 PM CT | 5:00 PM MT | 4:00 PM PT We're In This Together During this time of self-isolation because of the covid-19 crisis, it’s important to stay connected. Join FSHD Radio show host Tim Hollenback every Wednesday evening on Facebook Live for an open-ended conversation about whatever is on your mind. Whether you just need someone to talk to, are trying to solve a problem, or have ideas to share, we welcome…

Find out more »

Jun

3

Webinar on stem cell research with Dr. Rita Perlingeiro

Jun 3 @ 12:00 pm - 1:00 pm
Zoom Web Conference, https://zoom.us/j/442453571, Or Telephone: 669-900-6833, Meeting ID: 442 453 571
Kansas City,MOUnited States
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Dr. Rita Perlingeiro is Associate Professor of Medicine within the Lillehei Heart Institute at the University of Minnesota. Her primary research interests include understanding the molecular mechanisms controlling lineage-specific differentiation of pluripotent stem cells, and applying this information to efficiently generate tissue-specific stem/progenitor cells endowed with in vivo regenerative potential. Her work has potential applications in muscular dystrophy research and future therapies. She has received several awards and honors and has served as an expert reviewer and publisher for several…

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2020 FSHD Connect

Jun 27 @ 8:00 am - Jun 28 @ 2:00 pm
Washington Hilton, Washington,DC

The 2020 FSHD Connect. hosted by the FSHD Society, is the largest biennial educational and networking gathering of FSHD patients and families, researchers, and clinicians.

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Aug

5

Webinar on scapular stabilization surgery

Aug 5 @ 12:00 pm - 1:00 pm
Zoom Web Conference, https://zoom.us/j/442453571, Or Telephone: 669-900-6833, Meeting ID: 442 453 571
Kansas City,MOUnited States
+ Google Map

Dr. Anthony Romeo Join us for our webinar on scapular stabilization surgery at noon ET | 11:00 am CT | 10:00 am MT | 9:00 am PT. One of the classic symptoms of FSHD is "scapular winging." The muscles around the shoulder blade (scapula) weaken and allow the bone to jut out like an angel's wing. This can cause pain and prevent a person from being able to raise the arm. A solution that works for some patients is surgery…

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