FSHD Society

Name: FSHD Straight Talk with Tim Hollenback
Start: 2026-12-22T00:00:00-06:00
End: 2026-12-22T23:59:59-06:00

(781) 301-6060

fshdmeetings@fshdsociety.org

http://www.FSHDSociety.org

Events from this organizer

April 2026
FSHD University: Travel Without Limits: Exploring the World with FSHD

Featured Apr 16 @ 1:00 pm - 2:00 pm FSHD University

Zoom Virtual Meeting , United States

Thursday, April 16 at 1:00 pm ET Presenter: Mollie Garrett, Garrett Travel Adventures, LLC Mollie Garrett, a travel expert who specializes in accessible travel for individuals with disabilities and who brings her own lived experience as a traveler with FSHD, will share her personal journey navigating the world with FSHD, along with practical tips that […]
Dakotas Chapter Meeting

Apr 19 @ 6:00 pm - 7:00 pm

3788 55th Ave S, Fargo, ND 58104 3788 55th Ave S., Fargo, ND, United States

Join the Dakotas Chapter at our next in-person meeting to catch up with one another and provide support as we navigate life with FSHD. Address: <p data-pm-slice="1 1 Register Now
Young Adults

Featured Apr 20 @ 8:00 pm - 9:00 pm Young Adults

Zoom Virtual Meeting , United States

Young Adults Meeting 8:00 pm ET | 7:00 pm CT | 6:00 pm MT | 5:00 pm PT NEW DATE AND TIME: Third Monday of every OTHER month. We will meet in February, April, June, August, October, December in 2026. FSHD Young Adults is a social and support group focused on encouraging and empowering young […]
Parents’ Roundtable

Featured Apr 21 @ 8:00 pm - 9:00 pm Parent Roundtable

Zoom Virtual Meeting , United States

Parents' Roundtable 8:00 PM ET | 7:00 PM CT | 6:00 PM MT | 5:00 PM PT New Schedule: The Parents' Roundtable will meet quarterly starting in 2026. We will meet in January, April, July, and October of 2026. Our April Roundtable guest will be Emma Weatherley, the purpose-driven Managing Director of FSHD Global. Diagnosed […]
Feeling Fit with FSHD: Energy Sovereignty: A Qigong Practice for Women

Featured Apr 23 @ 7:30 pm - 8:30 pm Feeling Fit with FSHD

Zoom Virtual Meeting , United States

7:30pm ET/6:30 CT/5:30 MT/4:30 PT Join Energy Alchemist Rose Wippich for a nurturing 60-minute practice designed specifically for women navigating muscular dystrophy. This gentle session weaves together qigong and adaptive yoga, guiding you from grounding and gentle mobilization, through empowering practices to restorative integration with Reiki healing. You'll explore what it means to be the […]
New England Chapter In-Person Meeting

Apr 25 @ 12:00 pm - 2:00 pm 2026 Chapter Meetings

Come join us for an informal gathering to meet up with other FSHD New Englanders. This is a great opportunity to connect with our local community while enjoying a casual lunch. The restaurant is handicap accessible and an easy on-off from the highway. Reservations are required no later than April 22. Hope to see you […]
Canceled Wellness Hour – Weekend – Global Community

Apr 25 @ 1:00 pm - 2:00 pm Feeling Fit with FSHD

Zoom Virtual Meeting , United States

Cancelled, will return in May Join us for our next Weekend Wellness Hour, an open forum gathering designed for members of the international FSHD community who are available on the last Saturday of most months. This welcoming space brings together individuals at every stage of the FSHD journey, from newly diagnosed to long-experienced community members, […]
FSHD Straight Talk with Tim Hollenback

Featured Apr 28 FSHD Radio: Straight Talk with Tim Hollenback

On the second and fourth Tuesday of every month, listen for a new episode of FSHD Straight Talk with Tim Hollenback! These episodes highlight members of the FSHD Community who are living rich, full lives and diving into their experiences with FSHD. You can find new episodes on YouTube and your favorite podcast app. Subscribe […]
Virginia Chapter Meeting

Apr 28 @ 6:00 pm - 7:00 pm 2026 Chapter Meetings

Zoom Virtual Meeting , United States

You're invited to our next FSHD Society Chapter Meeting – a supportive space to connect with others who understand your journey. This is a great opportunity to connect, share experiences, and stay informed on the latest news, research, and resources from the FSHD community. Whether you’re looking to share your story, hear from others, or […]
May 2026
FSHD Straight Talk with Tim Hollenback

Featured May 12 FSHD Radio: Straight Talk with Tim Hollenback

On the second and fourth Tuesday of every month, listen for a new episode of FSHD Straight Talk with Tim Hollenback! These episodes highlight members of the FSHD Community who are living rich, full lives and diving into their experiences with FSHD. You can find new episodes on YouTube and your favorite podcast app. Subscribe […]
Chicago Chapter Meeting – In Person

May 16 @ 11:00 am - 1:00 pm 2026 Chapter Meetings

Northlake Library 231 N Wolf Rd, Northlake, IL, United States

We’d love to see you (in person)! We will have light refreshments and good conversations! <p data-pm-slice="1 1 Register Now
FSHD University: Ask the Scientist – A Community Town Hall with Dr. Lucienne Ronco

Featured May 21 @ 1:00 pm - 2:00 pm FSHD University

Zoom Web Conference , United States

Join us for a special FSHD University town hall where the community can connect directly with Dr. Lucienne Ronco, Chief Science Officer of the FSHD Society, for an open conversation about the science of FSHD. This interactive session is your opportunity to ask questions about the biology of FSHD, the latest research developments, emerging therapeutic […]
FSHD Straight Talk with Tim Hollenback

Featured May 26 FSHD Radio: Straight Talk with Tim Hollenback

On the second and fourth Tuesday of every month, listen for a new episode of FSHD Straight Talk with Tim Hollenback! These episodes highlight members of the FSHD Community who are living rich, full lives and diving into their experiences with FSHD. You can find new episodes on YouTube and your favorite podcast app. Subscribe […]
Virginia Chapter Meeting

May 26 @ 6:00 pm - 7:00 pm 2026 Chapter Meetings

Zoom Virtual Meeting , United States

You're invited to our next FSHD Society Chapter Meeting – a supportive space to connect with others who understand your journey. This is a great opportunity to connect, share experiences, and stay informed on the latest news, research, and resources from the FSHD community. Whether you’re looking to share your story, hear from others, or […]
FSHD 360 Québec

Featured May 30 @ 10:00 am - 3:30 pm 2026 FSHD 360s

Hotel Quartier DIX30 6500 Boul. de Rome, Brossard, QC, Canada, J4Y 0B6 Hotel Quartier DIX30 6500 Boul. de Rome, Brossard, QC, Canada

Saturday, May 30, 2026 Horaire de la conférence : 10h00 à 15h30 | Program runs from 10:00 am - 3:30 pm Lieu | Location: Hôtel Alt Quartier DIX30 | Alt Hotel Quartier DIX30 6500 Boul. de Rome, Brossard, QC, Canada, J4Y 0B6 2026 FSHD 360 Quebec Registrations 2026 FSHD 360 Quebec Info Page À propos […]
June 2026
FSHD Straight Talk with Tim Hollenback

Featured Jun 9 FSHD Radio: Straight Talk with Tim Hollenback

On the second and fourth Tuesday of every month, listen for a new episode of FSHD Straight Talk with Tim Hollenback! These episodes highlight members of the FSHD Community who are living rich, full lives and diving into their experiences with FSHD. You can find new episodes on YouTube and your favorite podcast app. Subscribe […]
Young Adults

Featured Jun 15 @ 8:00 pm - 9:00 pm Young Adults

Zoom Virtual Meeting , United States

Young Adults Meeting 8:00 pm ET | 7:00 pm CT | 6:00 pm MT | 5:00 pm PT NEW DATE AND TIME: Third Monday of every OTHER month. We will meet in February, April, June, August, October, December in 2026. FSHD Young Adults is a social and support group focused on encouraging and empowering young […]
FSHD Straight Talk with Tim Hollenback

Featured Jun 23 FSHD Radio: Straight Talk with Tim Hollenback

On the second and fourth Tuesday of every month, listen for a new episode of FSHD Straight Talk with Tim Hollenback! These episodes highlight members of the FSHD Community who are living rich, full lives and diving into their experiences with FSHD. You can find new episodes on YouTube and your favorite podcast app. Subscribe […]
2026 International Research Congress on FSHD

Featured Jun 24 - Jun 26

hybrid

Join us for the 2026 International Research Congress on FSHD June 25-26 in Chicago Register Now Submit Your Abstract Join us in Rosemont, Illinois (Greater Chicago area) for our annual global gathering dedicated to advancing research in Facioscapulohumeral Muscular Dystrophy (FSHD). The 2026 IRC convenes leading scientists, clinicians, industry partners, and emerging investigators to collaborate […]
2026 FSHD Connect Conference

Featured Jun 26 - Jun 28

The Future in Motion: Empowerment, Connection, and Care for Life with FSHD Uniting patients, families, and experts to equip, connect and prepare for what lies ahead. June 26–28, 2026 Hyatt Regency O’Hare Chicago Register Now Join us in Rosemont, IL (the Greater Chicago area) for the 2026 FSHD Connect Conference—our biennial global gathering dedicated to […]
July 2026
FSHD Straight Talk with Tim Hollenback

Featured Jul 14 FSHD Radio: Straight Talk with Tim Hollenback

On the second and fourth Tuesday of every month, listen for a new episode of FSHD Straight Talk with Tim Hollenback! These episodes highlight members of the FSHD Community who are living rich, full lives and diving into their experiences with FSHD. You can find new episodes on YouTube and your favorite podcast app. Subscribe […]
Parents’ Roundtable

Featured Jul 21 @ 8:00 pm - 9:00 pm Parent Roundtable

Zoom Virtual Meeting , United States

Parents' Roundtable 8:00 PM ET | 7:00 PM CT | 6:00 PM MT | 5:00 PM PT New Schedule: The Parents' Roundtable will meet quarterly starting in 2026. We will meet in January, April, July, and October of 2026. Join us for our Parents’ Roundtable on the 3rd Tuesday, where parents meet to exchange ideas, […]
FSHD Straight Talk with Tim Hollenback

Featured Jul 28 FSHD Radio: Straight Talk with Tim Hollenback

On the second and fourth Tuesday of every month, listen for a new episode of FSHD Straight Talk with Tim Hollenback! These episodes highlight members of the FSHD Community who are living rich, full lives and diving into their experiences with FSHD. You can find new episodes on YouTube and your favorite podcast app. Subscribe […]
August 2026
Western PA – 5th Annual Family Picnic

Aug 1 @ 12:00 pm - 3:00 pm 2026 Chapter Meetings

Adams Township Community Park, 698 Valencia Rd., Mars, PA 16046 Valencia Road, Mars, PA, United States

5th Annual Family Picnic August 1, 2026 | 12:00-3:00pm ET Adams Township Community Park, Township Pavilion 698 Valencia Rd., Mars, PA 16046 Please join us once again for this fun, in-person event where we can be in community and enjoy time together. Please RSVP so that we know how many people to expect! RSVP Here
FSHD Straight Talk with Tim Hollenback

Featured Aug 11 FSHD Radio: Straight Talk with Tim Hollenback

On the second and fourth Tuesday of every month, listen for a new episode of FSHD Straight Talk with Tim Hollenback! These episodes highlight members of the FSHD Community who are living rich, full lives and diving into their experiences with FSHD. You can find new episodes on YouTube and your favorite podcast app. Subscribe […]
Young Adults

Featured Aug 17 @ 8:00 pm - 9:00 pm Young Adults

Zoom Virtual Meeting , United States

Young Adults Meeting 8:00 pm ET | 7:00 pm CT | 6:00 pm MT | 5:00 pm PT NEW DATE AND TIME: Third Monday of every OTHER month. We will meet in February, April, June, August, October, December in 2026. FSHD Young Adults is a social and support group focused on encouraging and empowering young […]
FSHD Straight Talk with Tim Hollenback

Featured Aug 25 FSHD Radio: Straight Talk with Tim Hollenback

On the second and fourth Tuesday of every month, listen for a new episode of FSHD Straight Talk with Tim Hollenback! These episodes highlight members of the FSHD Community who are living rich, full lives and diving into their experiences with FSHD. You can find new episodes on YouTube and your favorite podcast app. Subscribe […]
Virginia Chapter Meeting

Aug 25 @ 6:00 pm - 7:00 pm 2026 Chapter Meetings

Zoom Virtual Meeting , United States

You're invited to our next FSHD Society Chapter Meeting – a supportive space to connect with others who understand your journey. This is a great opportunity to connect, share experiences, and stay informed on the latest news, research, and resources from the FSHD community. Whether you’re looking to share your story, hear from others, or […]
September 2026
FSHD Straight Talk with Tim Hollenback

Featured Sep 8 FSHD Radio: Straight Talk with Tim Hollenback

On the second and fourth Tuesday of every month, listen for a new episode of FSHD Straight Talk with Tim Hollenback! These episodes highlight members of the FSHD Community who are living rich, full lives and diving into their experiences with FSHD. You can find new episodes on YouTube and your favorite podcast app. Subscribe […]
Alberta Walk & Roll to Cure FSHD 2026

Sep 12 2026 Walk & Roll to Cure FSHD

2026 Alberta Walk & Roll to Cure FSHD Register to “walk or roll” today! Invite your family, friends, club members, neighbors, co-workers, classmates or congregation to join you. Everyone who registers will be given a free participant page and access to a state-of-the-art fundraising center. From there, you can share your story on social media […]
Chicagoland Walk & Roll to Cure FSHD 2026

Sep 12 2026 Walk & Roll to Cure FSHD

2026 Chicagoland Walk & Roll to Cure FSHD Register to “walk or roll” today! Invite your family, friends, club members, neighbors, co-workers, classmates or congregation to join you. Everyone who registers will be given a free participant page and access to a state-of-the-art fundraising center. From there, you can share your story on social media […]
Colorado Walk & Roll to Cure FSHD 2026

Sep 13 2026 Walk & Roll to Cure FSHD

2026 Colorado Walk & Roll to Cure FSHD Register to “walk or roll” today! Invite your family, friends, club members, neighbors, co-workers, classmates or congregation to join you. Everyone who registers will be given a free participant page and access to a state-of-the-art fundraising center. From there, you can share your story on social media […]
Pacific North West Sips & Smores for Smiles 2026

Sep 13 2026 Walk & Roll to Cure FSHD

Pacific Northwest Sips & Smores for Smiles Register for the Pacific Northwest Sips & Smores and support our annual FSHD fundraising campaign. Invite your family, friends, club members, neighbors, co-workers, classmates or congregation to join your online fundraising efforts. Then we will celebrate the Pacific Northwest together with sips and s’mores! Register for Sips & […]
Intermountain Walk & Roll to Cure FSHD 2026 (Salt Lake City, UT)

Sep 19 2026 Walk & Roll to Cure FSHD

2026 Intermoutain (Utah) Walk & Roll to Cure FSHD Register to “walk or roll” today! Invite your family, friends, club members, neighbors, co-workers, classmates or congregation to join you. Everyone who registers will be given a free participant page and access to a state-of-the-art fundraising center. From there, you can share your story on social […]
Ontario Walk & Roll to Cure FSHD 2026

Sep 19 2026 Walk & Roll to Cure FSHD

2026 Ontario Walk & Roll to Cure FSHD Register to “walk or roll” today! Invite your family, friends, club members, neighbors, co-workers, classmates or congregation to join you. Everyone who registers will be given a free participant page and access to a state-of-the-art fundraising center. From there, you can share your story on social media […]
2026 International Walk & Roll to Cure FSHD

Featured Sep 19 2026 Walk & Roll to Cure FSHD

2026 International Walk & Roll to Cure FSHD Register to “walk or roll” today! Invite your family, friends, club members, neighbors, co-workers, classmates or congregation to join you. Everyone who registers will be given a free participant page and access to a state-of-the-art fundraising center. From there, you can share your story on social media […]
Mid-Atlantic Walk & Roll to Cure FSHD 2026

Sep 20 2026 Walk & Roll to Cure FSHD

2026 Mid-Atlantic Walk & Roll to Cure FSHD Register to “walk or roll” today! Invite your family, friends, club members, neighbors, co-workers, classmates or congregation to join you. Everyone who registers will be given a free participant page and access to a state-of-the-art fundraising center. From there, you can share your story on social media […]
San Diego Walk & Roll to Cure FSHD 2026

Sep 20 2026 Walk & Roll to Cure FSHD

2026 San Diego Walk & Roll to Cure FSHD Register to “walk or roll” today! Invite your family, friends, club members, neighbors, co-workers, classmates or congregation to join you. Everyone who registers will be given a free participant page and access to a state-of-the-art fundraising center. From there, you can share your story on social […]
FSHD Straight Talk with Tim Hollenback

Featured Sep 22 FSHD Radio: Straight Talk with Tim Hollenback

On the second and fourth Tuesday of every month, listen for a new episode of FSHD Straight Talk with Tim Hollenback! These episodes highlight members of the FSHD Community who are living rich, full lives and diving into their experiences with FSHD. You can find new episodes on YouTube and your favorite podcast app. Subscribe […]
Virginia Chapter Meeting

Sep 22 @ 6:00 pm - 7:00 pm 2026 Chapter Meetings

Zoom Virtual Meeting , United States

You're invited to our next FSHD Society Chapter Meeting – a supportive space to connect with others who understand your journey. This is a great opportunity to connect, share experiences, and stay informed on the latest news, research, and resources from the FSHD community. Whether you’re looking to share your story, hear from others, or […]
Bay Area Walk & Roll to Cure FSHD 2026

Sep 26 2026 Walk & Roll to Cure FSHD

2026 Bay Area Walk & Roll to Cure FSHD Register to “walk or roll” today! Invite your family, friends, club members, neighbors, co-workers, classmates or congregation to join you. Everyone who registers will be given a free participant page and access to a state-of-the-art fundraising center. From there, you can share your story on social […]
Long Island Walk & Roll to Cure FSHD 2026

Sep 26 2026 Walk & Roll to Cure FSHD

2026 Long Island Walk & Roll to Cure FSHD Register to “walk or roll” today! Invite your family, friends, club members, neighbors, co-workers, classmates or congregation to join you. Everyone who registers will be given a free participant page and access to a state-of-the-art fundraising center. From there, you can share your story on social […]
St. Louis Walk & Roll to Cure FSHD 2026

Sep 26 2026 Walk & Roll to Cure FSHD

2026 St. Louis Walk & Roll to Cure FSHD Register to “walk or roll” today! Invite your family, friends, club members, neighbors, co-workers, classmates or congregation to join you. Everyone who registers will be given a free participant page and access to a state-of-the-art fundraising center. From there, you can share your story on social […]
New England Walk & Roll to Cure FSHD 2026

Sep 27 2026 Walk & Roll to Cure FSHD

2026 New England Walk & Roll to Cure FSHD Register to “walk or roll” today! Invite your family, friends, club members, neighbors, co-workers, classmates or congregation to join you. Everyone who registers will be given a free participant page and access to a state-of-the-art fundraising center. From there, you can share your story on social […]
New Jersey Shore Walk & Roll to Cure FSHD 2026

Sep 27 2026 Walk & Roll to Cure FSHD

2026 New Jersey Shore Walk & Roll to Cure FSHD Register to “walk or roll” today! Invite your family, friends, club members, neighbors, co-workers, classmates or congregation to join you. Everyone who registers will be given a free participant page and access to a state-of-the-art fundraising center. From there, you can share your story on […]
Sacramento Walk & Roll to Cure FSHD 2026

Sep 27 2026 Walk & Roll to Cure FSHD

2026 Sacramento Walk & Roll to Cure FSHD Register to “walk or roll” today! Invite your family, friends, club members, neighbors, co-workers, classmates or congregation to join you. Everyone who registers will be given a free participant page and access to a state-of-the-art fundraising center. From there, you can share your story on social media […]
October 2026
North Carolina Walk & Roll to Cure FSHD 2026

Oct 3 2026 Walk & Roll to Cure FSHD

2026 North Carolina Walk & Roll to Cure FSHD Register to “walk or roll” today! Invite your family, friends, club members, neighbors, co-workers, classmates or congregation to join you. Everyone who registers will be given a free participant page and access to a state-of-the-art fundraising center. From there, you can share your story on social […]
Florida (Northeast) Walk & Roll to Cure FSHD 2026

Oct 3 2026 Walk & Roll to Cure FSHD

2026 NE Florida Walk & Roll to Cure FSHD Register to “walk or roll” today! Invite your family, friends, club members, neighbors, co-workers, classmates or congregation to join you. Everyone who registers will be given a free participant page and access to a state-of-the-art fundraising center. From there, you can share your story on social […]
Los Angeles Walk & Roll to Cure FSHD 2026

Oct 4 2026 Walk & Roll to Cure FSHD

2026 Los Angeles Walk & Roll to Cure FSHD Register to “walk or roll” today! Invite your family, friends, club members, neighbors, co-workers, classmates or congregation to join you. Everyone who registers will be given a free participant page and access to a state-of-the-art fundraising center. From there, you can share your story on social […]
Virginia Walk & Roll to Cure FSHD 2026

Oct 4 2026 Walk & Roll to Cure FSHD

2026 Virginia Walk & Roll to Cure FSHD Register to “walk or roll” today! Invite your family, friends, club members, neighbors, co-workers, classmates or congregation to join you. Everyone who registers will be given a free participant page and access to a state-of-the-art fundraising center. From there, you can share your story on social media […]
Atlanta Walk & Roll to Cure FSHD 2026

Oct 11 2026 Walk & Roll to Cure FSHD

2026 Atlanta Walk & Roll to Cure FSHD Register to “walk or roll” today! Invite your family, friends, club members, neighbors, co-workers, classmates or congregation to join you. Everyone who registers will be given a free participant page and access to a state-of-the-art fundraising center. From there, you can share your story on social media […]
FSHD Straight Talk with Tim Hollenback

Featured Oct 13 FSHD Radio: Straight Talk with Tim Hollenback

On the second and fourth Tuesday of every month, listen for a new episode of FSHD Straight Talk with Tim Hollenback! These episodes highlight members of the FSHD Community who are living rich, full lives and diving into their experiences with FSHD. You can find new episodes on YouTube and your favorite podcast app. Subscribe […]
Young Adults

Featured Oct 19 @ 8:00 pm - 9:00 pm Young Adults

Zoom Virtual Meeting , United States

Young Adults Meeting 8:00 pm ET | 7:00 pm CT | 6:00 pm MT | 5:00 pm PT NEW DATE AND TIME: Third Monday of every OTHER month. We will meet in February, April, June, August, October, December in 2026. FSHD Young Adults is a social and support group focused on encouraging and empowering young […]
Parents’ Roundtable

Featured Oct 20 @ 8:00 pm - 9:00 pm Parent Roundtable

Zoom Virtual Meeting , United States

Parents' Roundtable 8:00 PM ET | 7:00 PM CT | 6:00 PM MT | 5:00 PM PT New Schedule: The Parents' Roundtable will meet quarterly starting in 2026. We will meet in January, April, July, and October of 2026. Join us for our Parents’ Roundtable on the 3rd Tuesday, where parents meet to exchange ideas, […]
Columbus Walk & Roll to Cure FSHD 2026

Oct 24 2026 Walk & Roll to Cure FSHD

2026 Columbus Walk & Roll to Cure FSHD Register to “walk or roll” today! Invite your family, friends, club members, neighbors, co-workers, classmates or congregation to join you. Everyone who registers will be given a free participant page and access to a state-of-the-art fundraising center. From there, you can share your story on social media […]
Drum & Roll to Cure FSHD 2026

Oct 25 2026 Walk & Roll to Cure FSHD

2026 Drum & Roll to Cure FSHD Register to “walk or roll” today! Invite your family, friends, club members, neighbors, co-workers, classmates or congregation to join you. Everyone who registers will be given a free participant page and access to a state-of-the-art fundraising center. From there, you can share your story on social media and […]
FSHD Straight Talk with Tim Hollenback

Featured Oct 27 FSHD Radio: Straight Talk with Tim Hollenback

On the second and fourth Tuesday of every month, listen for a new episode of FSHD Straight Talk with Tim Hollenback! These episodes highlight members of the FSHD Community who are living rich, full lives and diving into their experiences with FSHD. You can find new episodes on YouTube and your favorite podcast app. Subscribe […]
Virginia Chapter Meeting

Oct 27 @ 6:00 pm - 7:00 pm 2026 Chapter Meetings

Zoom Virtual Meeting , United States

You're invited to our next FSHD Society Chapter Meeting – a supportive space to connect with others who understand your journey. This is a great opportunity to connect, share experiences, and stay informed on the latest news, research, and resources from the FSHD community. Whether you’re looking to share your story, hear from others, or […]
November 2026
FSHD Straight Talk with Tim Hollenback

Featured Nov 10 FSHD Radio: Straight Talk with Tim Hollenback

On the second and fourth Tuesday of every month, listen for a new episode of FSHD Straight Talk with Tim Hollenback! These episodes highlight members of the FSHD Community who are living rich, full lives and diving into their experiences with FSHD. You can find new episodes on YouTube and your favorite podcast app. Subscribe […]
FSHD Straight Talk with Tim Hollenback

Featured Nov 24 FSHD Radio: Straight Talk with Tim Hollenback

On the second and fourth Tuesday of every month, listen for a new episode of FSHD Straight Talk with Tim Hollenback! These episodes highlight members of the FSHD Community who are living rich, full lives and diving into their experiences with FSHD. You can find new episodes on YouTube and your favorite podcast app. Subscribe […]
Virginia Chapter Meeting

Nov 24 @ 6:00 pm - 7:00 pm 2026 Chapter Meetings

Zoom Virtual Meeting , United States

You're invited to our next FSHD Society Chapter Meeting – a supportive space to connect with others who understand your journey. This is a great opportunity to connect, share experiences, and stay informed on the latest news, research, and resources from the FSHD community. Whether you’re looking to share your story, hear from others, or […]
December 2026
FSHD Straight Talk with Tim Hollenback

Featured Dec 8 FSHD Radio: Straight Talk with Tim Hollenback

On the second and fourth Tuesday of every month, listen for a new episode of FSHD Straight Talk with Tim Hollenback! These episodes highlight members of the FSHD Community who are living rich, full lives and diving into their experiences with FSHD. You can find new episodes on YouTube and your favorite podcast app. Subscribe […]
Young Adults

Featured Dec 21 @ 8:00 pm - 9:00 pm Young Adults

Zoom Virtual Meeting , United States

Young Adults Meeting 8:00 pm ET | 7:00 pm CT | 6:00 pm MT | 5:00 pm PT NEW DATE AND TIME: Third Monday of every OTHER month. We will meet in February, April, June, August, October, December in 2026. FSHD Young Adults is a social and support group focused on encouraging and empowering young […]
FSHD Straight Talk with Tim Hollenback

Featured Dec 22 FSHD Radio: Straight Talk with Tim Hollenback

On the second and fourth Tuesday of every month, listen for a new episode of FSHD Straight Talk with Tim Hollenback! These episodes highlight members of the FSHD Community who are living rich, full lives and diving into their experiences with FSHD. You can find new episodes on YouTube and your favorite podcast app. Subscribe […]

April 2026

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