Our look is new. Our purpose is the same. Learn more about our brand evolution.
Good Bad Things Theatrical Premiere For nearly a year, we’ve been following the journey of "Good Bad Things," and now, the award-winning film starring Danny Kurtzman, who lives with FSHD, […]
2024 Columbus Walk & Roll to Cure FSHD Saturday, September 14, 2024, 10:00am at Coffmann Park Pavilion Register to “walk or roll” today! Invite your family, friends, club members, neighbors, […]
Columbus Chapter Virtual Meeting Thursday, March 27th, 2025 from 7:00 - 8:00pm Zoom Meeting - RSVP for the link Let's gather for our Columbus Chapter Meeting where we will cover […]
We’re excited to pilot a new regional meeting format designed to bring more of our FSHD community together. This meeting is for the East Coast and will cover general updates and include regional breakout sessions.
The Walk & Roll to Cure FSHD is the FSHD Society’s largest, annual fundraiser raising awareness and funds for treatments and a cure for FSHD.
