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Being diagnosed with FSHD can feel overwhelming, but you are not alone. Every person’s journey is unique, but together, we can move forward with knowledge, support, and hope.
FSHD 360 Regional Conferences bring you the latest in research, treatments, and daily disease management, all designed to help you take control of your health and future. These events are held across the U.S. and feature leading experts. Whether you are new to the FSHD community or want to learn about the latest updates in FSHD research, FSHD 360 Conferences are here to help you on your journey.
Many of our FSHD 360 Conferences are often held in partnership with and at a Clinical Trial Research Network (CTRN) site.
Find a conference near you! Check the schedule below and join us in person.
9:00 a.m. Mountain Time doors open | 10:00-3:00 p.m. MT conference sessions The FSHD Society, in collaboration with FSHD Canada Foundation and the University of Calgary, AB, Canada, is hosting the first-ever Canadian FSHD 360 conference. Dr. Lawrence Korngut and his colleagues will share the latest news on the Canadian clinical trial research network, cutting-edge […]
Co-hosted by the UMass Wellstone Center for FSHD and the FSHD Society FSHD research and drug development is in a new era. Do you know what’s happening and how this might impact your life? Here’s your chance to hear from the research and advocacy leaders in New England, as well as from biopharmaceutical companies that […]
9:00 CT doors open. Conference 10:00 a.m. to 4:30 p.m. CT Lunch will be provided Our 2024 FSHD 360 in the Kansas City area is hosted by Dr. Jeffrey Statland of the University of Kansas Medical Center and FSHD CTRN. This is a historic time in FSHD, with new treatments on the horizon. Do you […]
9:00 a.m. US Pacific Time doors open | 10:00-3:00 p.m. US PT conference sessions The FSHD Society, in collaboration with Friends of FSH Research and the University of Washington Seattle, is hosting this year’s Pacific Northwest FSHD 360 conference. The University of Seattle is an international leader in FSHD research and a member of the […]
9:00 a.m. US Eastern Time doors open | 9:30 a.m. – 3:30 p.m. US ET conference sessions The FSHD Society, in collaboration with the Ohio State University and Nationwide Children’s Hospital, is hosting this year’s Ohio FSHD 360 conference. The OSU and Nationwide are international leaders in muscular dystrophy research and clinical trials, and are […]
9:00 a.m. US ET doors open | 10:00-4:00 p.m. US ET conference sessions The FSHD Society, in collaboration with the University of Rochester Medical Center, is hosting this year’s Rochester FSHD 360 conference. The University of Rochester is an epicenter for FSHD research in the U.S. in its role as the data hub for the […]
9:00 a.m. US Central Time doors open | 10:00-3:00 p.m. US CT conference sessions Save the date!! The FSHD Society, in collaboration with the University of San Antonio Health Science Center, University of Texas Austin Medical School, and University of Texas Southwest Medical School, is hosting our first-ever Texas FSHD 360 conference. Dr. Matthew Wicklund […]
November 2020, FSHD Family Day was hosted by the University of Kansas Medical Center (UKMC), Department of Neurology, and Jeffrey M. Statland, M.D. in partnership with the FSHD Society. KUMC is an integral part of the FSHD Clinical Trial Research Network (CTRN).
