Loading Events

Rochester FSHD 360

May 6 @ 10:00 am - 3:30 pm

9:00 a.m. US ET doors open | 10:00-3:30 p.m. US ET conference sessions

The FSHD Society, in collaboration with the University of Rochester Medical Center, is hosting this year’s Rochester FSHD 360 conference. The University of Rochester is an epicenter for FSHD research in the U.S. in its role as the data hub for the international FSHD Clinical Trial Research Network. Dr. Rabi Tawil and the center’s stellar team of clinicians and researchers will share the latest news on clinical trials and cutting-edge research. They will answer your questions about your health, genetic counseling and testing, physical and occupational therapy, and much more. Don’t miss out on the opportunity to meet patients and families throughout the region, and network with FSHD Society leaders and activists in our community!


University of Rochester
Saunders Research Building
265 Crittenden Blvd,
Rochester NY 14642

To be routed to the parking lot, put “URMC Parking Lot #3 – Kendrick North” into your GoogleMaps.

For overnight visitors, we will provide hotel information shortly.

Agenda will be posted soon. A light breakfast and lunch will be provided.

The registration portal will open soon. 


May 6
10:00 am - 3:30 pm
Event Categories:
, , ,


FSHD Society
(781) 301-6060
View Organizer Website


University of Rochester Saunders Research Building
265 Crittenden Blvd.
Rochester, NY 14642 United States