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This is YOUR university! Join us every 3rd Thursday for our monthly FSHD University webinar, where you’ll hear from different experts in the community to help you on your path with FSHD.
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Learn the best ways to stay active, manage your symptoms, and take care of your body with FSHD! From medical care to physical therapy and exercise, find tips to help you feel your best.
Living with FSHD can be challenging, but your mental health matters too! Discover ways to manage stress, handle life’s ups and downs, and find joy in everyday moments.
The more you know about FSHD research, the more you can take charge of your care and even help shape the future of treatments.
1:00 PM ET | noon CT | 11:00 AM MT | 10:00 AM PT Every year, we bring you an update on therapy development for FSHD. What strategies are being considered? How are different candidate drugs progressing through the process of reaching the clinic? What’s the latest on clinical trials? Nick Johnson, MD, director of […]
19:00 CET | 18:00 GMT | 1:00 p.m. ET | 12:00 p.m. CT | 11:00 a.m. MT | 10:00 a.m. PT The foods you eat impact your disease and can support improved muscle function in combination with supplementation and exercise. Using real FSHD patient food records, we will explore the journey to better nutrition for […]
With Jennifer Egert, PhD, and patients and family members 19:00 CET | 18:00 UK | 1:00 PM ET | 12:00 PM CT | 11:00 AM MT | 10:00am PT This month’s webinar will be a roundtable discussion on the challenges of communicating with those close to you about FSHD, how it is impacting you, and […]
