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[…] MD PhD Lilleen Walters and Kathryn Wagner I lost my dear friend, Lilleen Walters to FSHD in August. Lilleen and I met approximately 20 years ago when she and her […]
[…] solution for eating soup by Amy Bekier, San Diego, California Hello, my fellow slurpy, sloppy FSHD superhero eaters! For many of us with FSHD, as our hands, wrists, and arms […]
[…] number that you’ll ever do.” For all of us, particularly those with a challenge like FSHD, it is all too easy to relate to this song – unless we establish […]
by Amy Tesolin-Gee, Midland, Michigan Several FSHD patients, family members, and FSHD-experienced clinicians came together in Ann Arbor on June 4, 2016, for an educational meeting including lots of helpful, informal […]
[…] be sharing these stories from fellow FSH Society members that demonstrate how they won’t let FSHD stand in their way. Your support is life-changing to people like Kelly, Amy, Jeremy […]
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