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[…] the Society. Back then, almost no one was doing research on facioscapulohumeral muscular dystrophy ( FSHD). The human genome had not yet been mapped. The internet was in its infancy. […]
[…] FDA’s Patient-focused Drug Development initiative is a powerful tool to facilitate this focus. The newly-released FSHD Voice of the Patient Report is a case in point. The FSHD Society organized […]
[…] you have ever wished that you could do more to help in the fight against FSHD, we invite you to consider joining the FSHD Society Legacy Circle by including the […]
Mark Stone, the FSHD Society’s president and CEO, reported on the Society’s activities at his second quarter report to stakeholders on May 20, 2020. The webinar recording is now available […]
This April 21, the FSHD Society is holding its landmark Voice of the Patient Forum on drug development for FSH muscular dystrophy. You will be hearing a lot about it […]
