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[…] the generosity and courage of our patient community who volunteer for important clinical studies in FSHD. Many of you have given your valuable time, undergone complicated muscle strength test, filled […]
[…] cause of the disease. But this means that people will need a genetic test for FSHD in order to participate in clinical trials and to be prescribed these treatments (once […]
[…] leaders. A lesser-known South Dakotan, but equally impressive, is Tana Zwart, a member of the FSHD Society and the second adult to serve as a Muscular Dystrophy Association (MDA) national […]
[…] inhibits the activity of DUX4, implicated as the root cause of facioscapulohumeral muscular dystrophy ( FSHD). The compound provides resistance to DUX4’s pathogenic effects. It does not affect DUX4 itself, […]
[…] systems that will enable the Society to continue to grow and support patients and families with FSHD. “The FSH Society’s ability to fund research grants, advocate on behalf of patients, and […]
