Mark Stone, the FSHD Society's president and CEO, reported on the Society's activities at his second quarter report to stakeholders on May 20, 2020. The webinar recording is now available (click below). He highlighted how the FSHD Society's research initiatives, International Research Congress, FSHD Connect conference, Voice of the Patient Forum, community support, and fundraising have all quickly adapted to the new COVID-19-imposed reality. Not only has the Society not slowed down, it has leveraged online technology to expand its reach and become stronger than ever. We are indebted to our staff, volunteer leaders, and the entire community, for their creativity, resilience, persistence, and steadfast support.
Posted on: May 28, 2020