Our look is new. Our purpose is the same. Learn more about our brand evolution.
[…] and download it by clicking here. Highlights of this issue include the following: Details about FSHD Connect, our biennial meeting that brings together patients and families with some of the […]
[…] after suffering from confusing symptoms and seeing literally dozens doctors, I had been diagnosed with FSHD. While I hadn’t been completely disabled yet, I had begun to be really annoyed […]
[…] is Sam Ray. I am 13 years old, and I have facioscapulohumeral muscular dystrophy ( FSHD). It is a genetic disease that affects 870,000 people worldwide or about 1 in […]
[…] I won’t lie: That scared me. I’ve always tried to have a positive outlook, but FSHD was starting to break me. I have great support from family and friends, but […]
[…] and print here. Created by a team of national experts, this booklet provides information about FSHD and the impact the disease can have on students’ experiences during the school day. […]
Notifications
English
Spanish
French
German
Italian
Dutch
Russian
Chinese (Simplified)
Japanese
Hindi
Hebrew
Portuguese
Arabic
Igbo
Korean
Persian
Punjabi
Somali
Swahili
Turkish
Xhosa
Yoruba
Zulu