[ngg_images gallery_ids=”6″ display_type=”photocrati-nextgen_basic_slideshow”] We barely have words to express how grateful we are to everyone who contributed so much spirit and hard work to make our first-ever San Francisco gala, “Songs in the Key of Steven Blier,” such a smashing success. The event grossed over $100,000, which is absolutely amazing! Frederica Von Stade exhilarated the audience with her witty and… Read More »
“Songs in the Key of Steven Blier” wows San Francisco
Opera legend Frederica von Stade to sing for FSH Society
From PRWeb On Thursday July 24, 2014, the FSH Society will hold a very special benefit concert at Yoshi’s Jazz Club in San Francisco with opera’s legendary singer, Frederica von Stade, who will perform an intimate and personal suite of songs with the acclaimed pianist Steven Blier. Net proceeds for “Songs in the Key of Steven Blier,”… Read More »
FSH Watch Spring 2014
You can read and download it by clicking here. Highlights of this issue include the following: Details about FSHD Connect, our biennial meeting that brings together patients and families with some of the world’s foremost researchers and clinicians for two days of immersive learning and networking. The latest scientific advances including the discovery of two… Read More »
Twitter blows up for Phil’s Jam
The first annual “Phil’s Jam for FSH” drew a crowd of music lovers to the Wild Wing Cafe in Franklin, Tennessee, last night. Using the occasion to generate awareness about FSHD, the Society found a donor who agreed to give $1 for every Tweet and Facebook share about the event during a 24-hour period, up… Read More »