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Giorgio Tasca, MD PhD The 2021 FSHD Society Young Investigator Award at the International Research Congress was awarded to Giorgio Tasca, MD PhD, a neurologist at the Fondazione Policlinico Universitario […]
[…] that has transformed the science of the little-known and incurable disease, facioscapulohumeral muscular dystrophy ( FSHD), will be the beneficiary of a collection of fundraising events this fall. From Boston […]
Many of you have asked if the FSHD Society could provide holiday cards you can send to family and friends, asking for donations. We heard you and have come up […]
A Gift You Give to Yourself! by Leigh Reynolds, FSHD Society Celebrating the holidays can be emotionally draining for many, but for those with a chronic condition like FSH muscular […]
[…] testified at the Voice of the Patient Forum. Her son Noah was diagnosed with the FSHD four years ago, at the age of 10. Unable to keep up with his […]
