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[…] Agencies (LHHSE). This year, the Society has requested $24 million FY2017 appropriations for NIH research on FSHD. Identical testimony was submitted to the Senate. The following table from the FSH Society’s testimony […]
Emma Weatherley, executive director of Australia’s FSHD Global Research Foundation, has a refreshingly positive outlook on assistive devices. Instead of seeing the need to use a brace or wheelchair as […]
[…] services I normally use. She even took the time to watch my daughter’s documentary on FSHD, (Lexi Pappas – Growing Up With FSHD) and to visit the FSHD Society website. […]
by Haviva Ner-David, Kibbutz Hannaton, Israel Haviva Ner-David at the 2014 FSHD Connect. Photo by Romana Vysatova. WHEN I WAS diagnosed, aside from recommending swimming, the doctor told me and […]
[…] 24th year, has transformed the world for the 870,000 people living with facioscapulohumeral muscular dystrophy ( FSHD). Our work, fueled by your donations and powered by our staff, Board of Directors, research […]
