Emma Weatherley, executive director of Australia’s FSHD Global Research Foundation, has a refreshingly positive outlook on assistive devices. Instead of seeing the need to use a brace or wheelchair as a sign of defeat, she views devices as enabling technologies that enable people with FSHD to live their best life. In this talk to the World FSHD Alliance, she provides numerous examples of how she has incorporated devices into her life. One that we especially want to call out (at 12:25) are ergonomic arm supports that can be attached to a desk or dining table. The supports can help relieve the severe shoulder and neck stress and pain that are common in people with FSHD. You might want to give this a try!
Posted on: Jul 14, 2022