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[…] discusses the many ways in which your efforts, as individuals and family members living with FSHD, have paved the way for biopharmaceutical companies to pursue drug development. They truly cannot […]
Meet Jenny and Tony, our new FSHD University “adjunct professors.” Jenny and Tony are a married couple who share information and offer encouragement on their YouTube channel in the context […]
[…] might be helpful to someone trying to decide whether to get involved. My involvement with FSHD clinical studies started in 2016. The first FSHD drug trial in close to a […]
[…] helpful. One of the many highlights of my trip was meeting June Kinoshita from the FSHD Society and Lexi Pappas a fellow FSHD warrior! I will definitely be coming back […]
[…] April 21st is our community’s platform to testify to the FDA on the impact of FSHD. When the FDA considers whether to approve a new drug, it needs to know […]
