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Highlights include: Introduction of June Kinoshita, the new Executive Director of the FSHD Society. She describes a plan to raise visibility of FSH muscular dystrophy. Atlanta Patient-Researcher meeting. The state […]
[…] I don’t think any of my work as an artist really focuses on my having FSHD. I do feel, however, that my art and creativity are among the major things […]
[…] type of leg brace made a difference in her life. In speaking with a leading FSHD physical therapist, we realized that stance control braces are not well-known or widely used […]
[…] stood on top of Mt. Kilimanjaro with about 400 other hikers, unfurled my “Stronger than FSHD” sign, which I had made months earlier, and took my summit photo. I wanted […]
[…] Susan Aumiller, Powell, Ohio Last year, soon after my son and husband were diagnosed with FSHD, I called the FSH Society and said I’d like to organize a fundraiser. Within […]
