Setting a new record in our funding of research

In the first half of 2015, the FSH Society has awarded $485,840 in grants to new projects in facioscapulohumeral muscular dystrophy research. These projects were among a competitive group that was submitted in August 2014 for review by our Scientific Advisory Board. They include deep dives into how the genetics of FSHD affects the early development of muscle cells and into the lingering and all-important mystery of why muscle weakens in FSHD. Other studies will explore novel genetic and biochemical pathways that may be involved in FSHD.

With these awards, the Society continues to significantly expand funding for FSHD. In 2014, the Society funded a total of $819,261, a 24 percent increase over total funding in 2013. This year, we have set a goal of increasing our research funding to $920,000, a goal we hope to attain through the steadfast support of our members, fundraising event organizers and benefactors. We all owe them a tremendous debt of gratitude for their hard work and generosity.

For details on our grant awards, please click here.