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[…] “feel the burn” until it’s too late. Is this a normal response to exercise among FSHD patients? To preface my query: I have FSH muscular dystrophy but am what I […]
[…] a physical therapist from Re+Active Physical Therapy founded by Julie Hershberg (a legend in the FSHD community). Following the introductory information below, you’ll find a downloadable list of her exercises […]
Weighing risks and benefits We are often asked about whether people with FSHD can safely take statins. Statins are the most widely prescribed drug in the world and are used […]
[…] and fearless ambassadors, but also the small (yet no less important) accomplishments that individuals with FSHD experience every day. To celebrate the strength of our Society, please share your own […]
[…] concussions. 6. One member brought up a positive Beevor sign, which is an indicator of FSHD demonstrated with weak lower abdominal muscles. 7. Many shared that they feel unstable when […]
