We Want You to #ShareYourVictory!

At this year’s Inaugural CureFSHD National Gala on November 11, we look to celebrate not just the victories of our tireless researchers and fearless ambassadors, but also the small (yet no less important) accomplishments that individuals with FSHD experience every day.

To celebrate the strength of our Society, please share your own personal victory with us by sending your photos, videos, and stories to Beth.Johnston@FSHSociety.org, or share them on Twitter, Facebook and Instagram by using the hashtag #ShareYourVictory.

We’ll share your victories during the CureFSHD National Gala, and will also be celebrating your triumphs on our website and on social media. We can’t wait for you to #ShareYourVictory with us!

Over the past 25 years, we have had countless ambassadors and researchers accomplish amazing victories—all to spread awareness of FSHD and to bring us one step closer to finding a cure.

As amazing and inspirational as the stories of Carden and Spencer Wyckoff, Ryan Levinson, Lexi Pappas, David Lucas, Pierre, Meredith Huml, Trisha Sprayberry and countless others are, we know that our members experience their own victories every single day. Together, we are a Society of individuals determined to show the world that we are not limited by FSHD.