Our look is new. Our purpose is the same. Learn more about our brand evolution.
Stay informed and connected with the latest developments in the FSHD community. This is your go-to resource for updates on research news, community stories, and FSHD Society initiatives. We encourage […]
[…] it an ideal place for her family. Chelsea also shares a deeply personal connection to FSHD, navigating life with the condition herself. Her journey inspired her to create HonestlyFSHD, a […]
Carolyn Lloyd’s journey as chief development officer of the FSHD Society reflects her lifelong commitment to service and empathy for those affected by chronic illness. Her role as a caregiver […]
[…] Sverdrup, creating a safe, open space for people of all ages who were diagnosed with FSHD early in life. The group meets monthly, focusing on shared experiences and life hacks […]
[…] had a new attendee who moved from Monterey and had never met another person with FSHD until a few years ago when she met the daughter’s of the FSH Society […]
