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[…] the Light features the powerful story of high-school senior Sarah Geissler, who is living with FSHD, and her experience with FSH muscular dystrophy, a rare genetic muscle-weakening disease that affects […]
[…] the form online on their website. Otherwise, you may mail the completed form to the FSHD Society, and we’ll handle the rest: FSHD Society ATTN: Dermot Whittaker 450 Bedford Street […]
Find resources near you by Anna Gilmore, FSHD Society Among the most frustrating interactions you can have with a new healthcare provider is realizing that they don’t know anything about […]
Progress is driven by people united in purpose. With your unwavering support, the FSHD Society continues turning hope into action. This past year, we accelerated clinical trial readiness, launched groundbreaking […]
Understanding FSHD Is About More Than Clinical Facts FSHD presents unique challenges for both patients and healthcare professionals. Providing optimal care requires more than just clinical knowledge. The Society is […]
