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[…] share with you a survey containing questions to help researchers better understand the impact of FSHD on patients and caregivers. The survey was developed collaboratively by Acceleron Pharma, aTyr Pharma, […]
[…] and Lou Casella. They shared their experiences using cannabis-based products to address a variety of FSHD-related issues. Others shared their experiences as well, for a highly informative and interesting evening. […]
[…] through the Georgia portion of the Appalachian Trail to raise awareness and funds to cure FSHD. You can now watch their experience on WSB-TV Atlanta! In total, 25 family members, […]
[…] the future of laws and programs of interest to researchers, patients and caregivers dealing with FSHD. While it is impossible to foresee the possible changes, we want to assure you […]
The journal Neuromuscular Disease has published a summary of the FSHD Society’s 2023 scientific conference held in Milan, Italy, this past June. The article was co-authored by Jamshid Arjomand, PhD, […]
