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[…] the FSH Watch. This Watch not only shares patient stories and information on coping with FSHD, but also contains updates on the research projects being funded by the FSH Society […]
[…] share with you a survey containing questions to help researchers better understand the impact of FSHD on patients and caregivers. Â The survey was developed collaboratively by Acceleron Pharma, aTyr Pharma, […]
[…] and Lou Casella. They shared their experiences using cannabis-based products to address a variety of FSHD-related issues. Others shared their experiences as well, for a highly informative and interesting evening. […]
[…] through the Georgia portion of the Appalachian Trail to raise awareness and funds to cure FSHD. You can now watch their experience on WSB-TV Atlanta! In total, 25 family members, […]
[…] the future of laws and programs of interest to researchers, patients and caregivers dealing with FSHD. While it is impossible to foresee the possible changes, we want to assure you […]
