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[…] include projects to advance a gene therapy method, study how the DUX4 gene (which causes FSHD) can damage muscles, identify genes that modify DUX4 toxicity, investigate a drug that may […]
[…] Foundation. We plan to use the donation to support public awareness and youth education about FSHD, such as a social media awareness raising scholarship competition administered by the Jain Foundation. Eligible […]
No one should have to go through their FSHD journey alone. There is strength in sharing experiences, learning from others, and knowing that you’re not the only one facing these […]
[…] to fund scholarships to college students who teach others about hereditary muscle-weakening diseases. These conditions include FSHD, the limb-girdle muscular dystrophies (LGMDs), Pompe disease and HIBM (Hereditary inclusion body myopathies). Four $3,000 […]
[…] mouth. This can affect the ability to smile and can impair speech. Many people with FSHD experience the frustration of not being able to communicate easily. So we were excited […]
