The FSH Society has teamed up with the Jain Foundation and 7 other patient advocacy organizations to fund scholarships to college students who teach others about hereditary muscle-weakening diseases. These conditions include FSHD, the limb-girdle muscular dystrophies (LGMDs), Pompe disease and HIBM (Hereditary inclusion body myopathies).
Four $3,000 scholarships will be awarded in 2016 to students who teach others about LGMDs (limb-girdle muscular dystrophies) and similar genetic muscle-weakening conditions. Any student entering an accredited US post-secondary institution including colleges, universities, technical schools, medical schools and graduate programs is eligible to apply.
About 5,000 students applied last year for a Jain Foundation scholarship focused on LGMD2B; the applicants spread disease awareness to over 30,000 people. Following on this huge success, this year students will learn about all LGMDs and similar muscle diseases such as Pompe, FSHD (Facioscapulohumeral muscular dystrophy) and HIBM (Hereditary inclusion body myopathies). By including more diseases and recruiting other rare disease foundations to help advertise it, the scholarship will be even more effective in spreading disease awareness.
Read the press release.