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[…] Carden Wyckoff recently created a series of posts on Avelist regarding misconceptions and living with FSHD. Below is her latest post on living with muscular dystrophy as she hopes to […]
[…] currently underway testing the safety and efficacy of losmapimod to treat facioscapulohumeral muscular dystrophy ( FSHD). The company started recruiting volunteers for the trial in August of 2019 and completed […]
At the FSHD Society, inclusivity is part of our organizational DNA. We stand firmly against racism and all forms of discrimination as we fight for the lives and well-being of […]
by Lynn Stevens, Bossier City, Louisiana Lynn Stevens About 10 years ago, the progression of FSHD on my body forced me to begin evaluating whether I should continue trying to […]
The FSHD Society is partnering with researchers on an important study of the impact of COVID-19 on the muscular dystrophy community. Please read this letter from Dr. Rabi Tawil and […]
