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[…] Hanger Clinic in Wethersfield, CT. Ms. Downing has worked with Kathy Senecal, a client with FSHD, on fitting her with a brace. She provides an excellent explanation of the mechanics […]
[…] of directors, donated funds for travel scholarships so that 20 patients could attend our 2018 FSHD Connect conference in Las Vegas, he had no inkling of the dividends his gift […]
[…] their family and professional experience, the Prilleltenskys will discuss the emotional and relational side of FSHD. Ora, who uses an electric wheelchair, was diagnosed with FSHD at age 18. She […]
by Nikki Young, Clarksburg, Maryland Like many others with FSHD, I have suffered from dry eyes. Weakness in the muscles around my eyes prevented me from closing my eyelids fully, […]
[…] FSH Society. You are the very soul of persistence. Figuratively, each of you living with FSHD takes “11 more steps” every day by: rising hours earlier than others just to […]
