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by Lynn Stevens, Bossier City, Louisiana Lynn Stevens About 10 years ago, the progression of FSHD on my body forced me to begin evaluating whether I should continue trying to […]
The FSHD Society is partnering with researchers on an important study of the impact of COVID-19 on the muscular dystrophy community. Please read this letter from Dr. Rabi Tawil and […]
[…] been promised for decades that “one day in the future” there will be treatments for FSHD, and so it’s amazing to realize that day is almost upon us. The future […]
[…] programs, feature films, and documentaries for and about the National Football League (NFL). Alan has FSHD in his family. “My great-grandmother, grandmother, mother and brother all had/have it,” he says. […]
[…] is that every donation for the chance to win will support the amazing work of FSHD Society, a cause close to Dan’s heart. His aunt Gayle has FSHD and is […]
