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[…] of one of their employees, Angela Farkas, in sharing her story and her struggle with FSHD. We want to share her story with you, too: Angela Farkas was raised in […]
[…] us about his experiences riding in the cross-continental Race Across America this summer with Team FSHD Cycling. Despite the toll FSHD has taken on his body, Steven Blier continues to […]
[…] many years, and is currently using cutting-edge technologies to examine mechanisms of epigenetic dysregulation in FSHD muscle cells and explore potential avenues of therapy. In 2016, Dr. Himeda received the […]
[…] hospitals. Â Lefebvre was Secretary of the FSH Society Board of Directors from 1991-2007. Â As an FSHD patient, he was interested in expediting a solution to the FSHD problem. Â Mr. Lefebvre […]
[…] a Segway I immediately recognized it as something that could possibly help my mobility. My FSHD had progressed to the point where I was having difficulty walking. At my first […]
