Our look is new. Our purpose is the same. Learn more about our brand evolution.
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FSHD brings with it several important health issues, We’re here to help you learn and understand more. In addition to the information below, follow our blog for regular updates […]
[…] of Carol Anne Perez’s death at age 76, on February 3, 2012, from respiratory complications of FSHD. Many patients remember Carol as the person on the other end of the phone […]
[…] include: Annual research report, with updates from FSH Society grant recipients. Groundbreaking study establishing that FSHD may be the most prevalent of muscular dystrophies. A new NIH-funded Wellstone Center for […]
[…] University of Maryland, Baltimore Jacobs Family Post-doctoral Research Award established. Family picnic raises funds for FSHD fellowship. FSH Society Annual Donor Report And much more! Read or download the full […]
