We note the three-year anniversary of Carol Anne Perez’s death at age 76, on February 3, 2012, from respiratory complications of FSHD. Many patients remember Carol as the person on the other end of the phone line when they would call the FSH Society for help and a sympathetic ear.
She changed many people’s lives. As one such patient attested: “If it wasn’t for Carol, and if it wasn’t for the FSH Society, I truly believe I would not be the person I am today: I’ve had a full career; I have a loving wife, a beautiful son, and a certain type of light that shines out from me, given to me by a beautiful woman who had a spark in her eyes and fire in her soul.”
Born and raised in Queens, New York, Carol earned a Master’s in Education from Northeastern University. She was an authority on vocational rehabilitation and leaves behind a legacy of assisting countless numbers of people with disability and disease to lead better lives. Carol sought to see the best in every individual and was tireless in her battle against injustice to the ill and handicapped. She served the FSH Society as Secretary of the Board and Executive Director, and was also Area Director for the Massachusetts Rehabilitation Commission. She lived her final days with dignity in her own home surrounded by loved ones.
Those wishing to honor Carol’s memory may make a donation to the FSH Society here.