Search results for ‘fshd’

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An update from Mark Stone [VIDEO]

Yesterday, FSHD Society President and CEO gave a special webinar to update our major stakeholders on the progress of the Therapeutic Accelerator initiative and answer their questions. We’re delighted to […]

Danny Kurzman

Danny Kurtzman designs for life

[…] his clothing line appeals. Kurtzman and his younger brother (who passed away in 2008 from FSHD) were diagnosed in childhood. “My parents told me and my brother that you’re going […]

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Our annual report card [2018]

[…] stem cells, CRISPR, new treatment strategies, and more than $100 million of private investment in FSHD therapies. Thanks to you, we are launching the FSHD Therapeutic Accelerator Project to remove […]