Have you thought about what you can do in your own backyard to serve FSHD patients and families in your community and advocate for greater awareness and resources to develop treatments? Look no further. Our community development team of Beth Johnston and Anna Gilmore walk you through the ABC’s of starting a chapter and Walk & Roll. Some of our pioneering chapter and Walk leaders are also on hand to share their advice and encouragement.
Posted on: May 18, 2019