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We are pleased to share these videos from our 2017 FSHD Family Day conference in Los Angeles, held on October 21, 2017. We are so grateful to Laurie Heyman and […]
[…] York are conducting a research study to learn more about a potential symptomatic therapy for FSHD. This study may help determine if a combination of drugs (recombinant human growth hormone […]
[…] in Muscle & Nerve begins to address this question. This is a topic that many FSHD patients worry about, because weaker muscles lead to more falls, and fractured bones take […]
[…] America. It is truly inspiring and worth sharing. Dear Friends, To mark this year’s World FSHD Day, on June 20th, I am asking you to help raise global visibility and […]
The MOVE+ study aims to find out. Participants needed! by June Kinoshita, FSHD Society Courtesy of GE Imagine that you are in an FSHD clinical trial a few years in […]
