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Los Angeles FSHD Family Day videos

Home / Living with FSHD / Health and Medicine / Los Angeles FSHD Family Day videos

Posted on: Mar 07, 2018

We are pleased to share these videos from our 2017 FSHD Family Day conference in Los Angeles, held on October 21, 2017. We are so grateful to Laurie Heyman and Selina Lai for their help with programming and event logistics; David Garden for recording the conference video; and Ellen Rennell for editing the videos. A big thank you to all!

  • Importance of global research and patient connectivity
    June Kinoshita, Chief Strategic Programs Officer, FSH Society
  • Genetics, disease mechanism, and therapeutic targets FSHD
    Tahseen Mozaffar, MD, UC Irvine Muscular Dystrophy Clinic
  • Physical therapy and exercise for FSHD
    Julie Hershberg PT, DPT, NCS, USC Division of Biokinesiology and Physical Therapy
  • The Clinical Trial Process: Outlook and Challenges for FSHD
    Perry Shieh, MD PhD, UCLA Neuromuscular Center
  • Using stem cells for FSHD Modeling and treatment
    Amanda Rickard, Senior Scientist, Genea Biocells, San Diego
  • Emerging treatment strategies for FSHD
    Peter Jones, PhD, Univ. of Nevada Reno School of Medicine (slides)
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Filed Under: Health and Medicine, Living with FSHD, PT and Exercise

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