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[…] homeobox 4 (DUX4) protein as a potential treatment for patients with facioscapulohumeral muscular dystrophy ( FSHD). Pending abstract acceptance, Arrowhead intends to present preclinical data on ARO-DUX4 at the 28th Annual FSHD […]
This story about “coming out” with an FSHD diagnosis was first published in the 2014 summer issue of the FSH Watch newsletter. Its message is timeless. The #FSHDselfies campaign by […]
[…] Backyard 3744 Moore Street, Mar Vista, CA 90066. 1:00-5:00 PM A gathering for people with FSHD from the Los Angeles region, for networking, learning, advocacy and more! Organized by the […]
[…] that we believe will see effective therapies become available – the families that form the FSHD Society face new challenges. This year, we have an unprecedented opportunity to participate in […]
[…] give kids an explanation they can digest. I was casually talking to one of the FSHD team members at Fulcrum Therapeutics (a biopharma working on FSHD therapies) about our daughter’s […]
